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An observational study of the level at which parents participate in decisions during their child's hospitalization.

Hallström, Inger LU ; Runeson, Ingrid and Elander, Gunnel (2002) In Nursing Ethics 9(2). p.202-214
Abstract
When a child is hospitalized, the parents find themselves in an unfamiliar environment and their parental role changes. They are in a stressful and often anxiety-filled situation and it may be difficult for them to participate in decisions. The purpose of this study was to examine the extent to which parents participate in decisions during the course of events when their child is hospitalized. Thirty-five parents of 24 children (aged 5 months to 18 years) were followed by mobile observation during their child's hospitalization in a paediatric department in Sweden. Three researchers analysed field notes in three steps, using manifest and latent coding. In step 1, 119 situations that included a decision process were identified. In step 2,... (More)
When a child is hospitalized, the parents find themselves in an unfamiliar environment and their parental role changes. They are in a stressful and often anxiety-filled situation and it may be difficult for them to participate in decisions. The purpose of this study was to examine the extent to which parents participate in decisions during the course of events when their child is hospitalized. Thirty-five parents of 24 children (aged 5 months to 18 years) were followed by mobile observation during their child's hospitalization in a paediatric department in Sweden. Three researchers analysed field notes in three steps, using manifest and latent coding. In step 1, 119 situations that included a decision process were identified. In step 2, the situations were assessed according to a five-level scale concerning how the parents' wishes, desires or values had been respected. In step 3, each situation was scrutinized with respect to factors influencing the extent of the parents' participation. The results showed that parents have varying ability to be involved in decision making. Professionals need to communicate more openly with them in order to identify and satisfy their needs because some parents are unwilling or incapable of expressing them. (Less)
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author
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
Consumer Satisfaction, Sweden, Non-U.S. Gov't, Support, Professional-Family Relations, Patient Participation, Parents : psychology, Male, Infant, Human, Female, Decision Making, Family Health, Communication, Preschool, Child, Hospitalized, Adolescence
in
Nursing Ethics
volume
9
issue
2
pages
202 - 214
publisher
SAGE Publications Inc.
external identifiers
  • wos:000174569800010
  • pmid:11944209
  • scopus:84992889596
ISSN
1477-0989
DOI
10.1191/0969733002ne499oa
language
English
LU publication?
yes
id
12e2eec3-1bac-47bd-9593-1f53a5a87004 (old id 107555)
alternative location
http://www.ncbi.nlm.nih.gov:80/entrez/query.fcgi?cmd=Retrieve&db=PubMed&list_uids=11944209&dopt=Abstract
date added to LUP
2007-07-19 11:48:04
date last changed
2017-01-15 03:38:25
@article{12e2eec3-1bac-47bd-9593-1f53a5a87004,
  abstract     = {When a child is hospitalized, the parents find themselves in an unfamiliar environment and their parental role changes. They are in a stressful and often anxiety-filled situation and it may be difficult for them to participate in decisions. The purpose of this study was to examine the extent to which parents participate in decisions during the course of events when their child is hospitalized. Thirty-five parents of 24 children (aged 5 months to 18 years) were followed by mobile observation during their child's hospitalization in a paediatric department in Sweden. Three researchers analysed field notes in three steps, using manifest and latent coding. In step 1, 119 situations that included a decision process were identified. In step 2, the situations were assessed according to a five-level scale concerning how the parents' wishes, desires or values had been respected. In step 3, each situation was scrutinized with respect to factors influencing the extent of the parents' participation. The results showed that parents have varying ability to be involved in decision making. Professionals need to communicate more openly with them in order to identify and satisfy their needs because some parents are unwilling or incapable of expressing them.},
  author       = {Hallström, Inger and Runeson, Ingrid and Elander, Gunnel},
  issn         = {1477-0989},
  keyword      = {Consumer Satisfaction,Sweden,Non-U.S. Gov't,Support,Professional-Family Relations,Patient Participation,Parents : psychology,Male,Infant,Human,Female,Decision Making,Family Health,Communication,Preschool,Child,Hospitalized,Adolescence},
  language     = {eng},
  number       = {2},
  pages        = {202--214},
  publisher    = {SAGE Publications Inc.},
  series       = {Nursing Ethics},
  title        = {An observational study of the level at which parents participate in decisions during their child's hospitalization.},
  url          = {http://dx.doi.org/10.1191/0969733002ne499oa},
  volume       = {9},
  year         = {2002},
}