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Long-term cognitive functional limitations post stroke: objective assessment compared with self-evaluations and spouse reports.

Wendel, Kerstin LU ; Risberg, Jarl LU ; Pessah-Rasmussen, Hélène LU ; Ståhl, Agneta LU and Iwarsson, Susanne LU (2008) In International Journal of Rehabilitation Research 31(3). p.231-239
Abstract
This study was part of a Swedish interdisciplinary research project targeting accessibility problems in public transport for people with cognitive functional limitations (CFLs). The objective was to describe and compare different assessment perspectives of long-term CFLs among community citizens having had CFLs in the acute stroke phase but with moderate physical limitations. Eighty-four participants in ordinary housing 18-36 months post stroke, initially sampled from a national quality stroke register, received data collection home-visits. The Cognistat screening instrument was used for an objective assessment, and a study-specific questionnaire for self-evaluations of CFLs. A revised form of the latter questionnaire was used for reports... (More)
This study was part of a Swedish interdisciplinary research project targeting accessibility problems in public transport for people with cognitive functional limitations (CFLs). The objective was to describe and compare different assessment perspectives of long-term CFLs among community citizens having had CFLs in the acute stroke phase but with moderate physical limitations. Eighty-four participants in ordinary housing 18-36 months post stroke, initially sampled from a national quality stroke register, received data collection home-visits. The Cognistat screening instrument was used for an objective assessment, and a study-specific questionnaire for self-evaluations of CFLs. A revised form of the latter questionnaire was used for reports from spouses of a subset of 30 participants. The agreement between self-evaluated CFLs and spouse reports was analysed by percentage agreement and Cohen's kappa, whereas differences in ratings were tested by McNemar's test, as were differences between objective and self-evaluated/spouse-reported occurrence of CFLs. Regardless of the different perspectives applied, CFLs were frequent. In absence of significant difference in ratings, the percentage agreement between self-evaluations and spouse reports was good or very good, whereas kappa values were less encouraging. Overall, participants and spouses expressed more CFLs, as compared with the screening. Most consistency was demonstrated for the area of calculation. When researchers and clinicians solely rely on cognitive screenings in their investigations, there is a considerable risk for underestimations of CFLs. (Less)
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author
organization
publishing date
type
Contribution to journal
publication status
published
subject
in
International Journal of Rehabilitation Research
volume
31
issue
3
pages
231 - 239
publisher
Lippincott Williams & Wilkins
external identifiers
  • wos:000259250800006
  • scopus:58149380677
ISSN
1473-5660
DOI
10.1097/MRR.0b013e3283021912
language
English
LU publication?
yes
id
434b4601-6878-4d18-8515-cffe0cdf38cc (old id 1140871)
alternative location
http://www.ncbi.nlm.nih.gov/pubmed/18708846?dopt=Abstract
date added to LUP
2008-11-04 11:15:11
date last changed
2017-11-19 03:31:18
@article{434b4601-6878-4d18-8515-cffe0cdf38cc,
  abstract     = {This study was part of a Swedish interdisciplinary research project targeting accessibility problems in public transport for people with cognitive functional limitations (CFLs). The objective was to describe and compare different assessment perspectives of long-term CFLs among community citizens having had CFLs in the acute stroke phase but with moderate physical limitations. Eighty-four participants in ordinary housing 18-36 months post stroke, initially sampled from a national quality stroke register, received data collection home-visits. The Cognistat screening instrument was used for an objective assessment, and a study-specific questionnaire for self-evaluations of CFLs. A revised form of the latter questionnaire was used for reports from spouses of a subset of 30 participants. The agreement between self-evaluated CFLs and spouse reports was analysed by percentage agreement and Cohen's kappa, whereas differences in ratings were tested by McNemar's test, as were differences between objective and self-evaluated/spouse-reported occurrence of CFLs. Regardless of the different perspectives applied, CFLs were frequent. In absence of significant difference in ratings, the percentage agreement between self-evaluations and spouse reports was good or very good, whereas kappa values were less encouraging. Overall, participants and spouses expressed more CFLs, as compared with the screening. Most consistency was demonstrated for the area of calculation. When researchers and clinicians solely rely on cognitive screenings in their investigations, there is a considerable risk for underestimations of CFLs.},
  author       = {Wendel, Kerstin and Risberg, Jarl and Pessah-Rasmussen, Hélène and Ståhl, Agneta and Iwarsson, Susanne},
  issn         = {1473-5660},
  language     = {eng},
  number       = {3},
  pages        = {231--239},
  publisher    = {Lippincott Williams & Wilkins},
  series       = {International Journal of Rehabilitation Research},
  title        = {Long-term cognitive functional limitations post stroke: objective assessment compared with self-evaluations and spouse reports.},
  url          = {http://dx.doi.org/10.1097/MRR.0b013e3283021912},
  volume       = {31},
  year         = {2008},
}