European principles of haemophilia care
(2008) In Haemophilia 14(2). p.361-374- Abstract
- As the management of haemophilia is complex, it is essential that those with the disorder should have ready access to a range of services provided by a multidisciplinary team of specialists. This document sets out the principles of comprehensive haemophilia care in Europe. Within each country there should be a national organization which oversees the provision of specialist Comprehensive Care Centres that provide the entire spectrum of clinical and laboratory services. Depending upon the size and geographical distribution of the population, a network of smaller haemophilia centres may also be necessary. There should be arrangements for the supply of safe clotting factor concentrates which can also be used in home treatment and prophylaxis... (More)
- As the management of haemophilia is complex, it is essential that those with the disorder should have ready access to a range of services provided by a multidisciplinary team of specialists. This document sets out the principles of comprehensive haemophilia care in Europe. Within each country there should be a national organization which oversees the provision of specialist Comprehensive Care Centres that provide the entire spectrum of clinical and laboratory services. Depending upon the size and geographical distribution of the population, a network of smaller haemophilia centres may also be necessary. There should be arrangements for the supply of safe clotting factor concentrates which can also be used in home treatment and prophylaxis programmes. A national register of patients is recommended along with collection of treatment statistics. As comprehensive haemophilia care is multidisciplinary by nature, the need for education and research programmes for all staff members is emphasized: Members of the Interdisciplinary Working Group not represented in the list of authors are mentioned in Section 4 of this document. (Less)
Please use this url to cite or link to this publication:
https://lup.lub.lu.se/record/1193301
- author
- Colvin, B. T. ; Astermark, Jan LU ; Fischer, K. ; Gringeri, A. ; Lassila, R. ; Schramm, W. ; Thomas, A. and Ingerslev, J.
- organization
- publishing date
- 2008
- type
- Contribution to journal
- publication status
- published
- subject
- keywords
- treatment, principles, management, haemophilia, haemophilia care
- in
- Haemophilia
- volume
- 14
- issue
- 2
- pages
- 361 - 374
- publisher
- Wiley-Blackwell
- external identifiers
-
- wos:000253626100018
- scopus:40349091533
- ISSN
- 1351-8216
- DOI
- 10.1111/j.1365-2516.2007.01625.x
- language
- English
- LU publication?
- yes
- id
- 0de181e7-84a9-4fb2-a224-0f41f75224af (old id 1193301)
- date added to LUP
- 2016-04-01 12:08:20
- date last changed
- 2022-07-22 08:30:58
@article{0de181e7-84a9-4fb2-a224-0f41f75224af,
abstract = {{As the management of haemophilia is complex, it is essential that those with the disorder should have ready access to a range of services provided by a multidisciplinary team of specialists. This document sets out the principles of comprehensive haemophilia care in Europe. Within each country there should be a national organization which oversees the provision of specialist Comprehensive Care Centres that provide the entire spectrum of clinical and laboratory services. Depending upon the size and geographical distribution of the population, a network of smaller haemophilia centres may also be necessary. There should be arrangements for the supply of safe clotting factor concentrates which can also be used in home treatment and prophylaxis programmes. A national register of patients is recommended along with collection of treatment statistics. As comprehensive haemophilia care is multidisciplinary by nature, the need for education and research programmes for all staff members is emphasized: Members of the Interdisciplinary Working Group not represented in the list of authors are mentioned in Section 4 of this document.}},
author = {{Colvin, B. T. and Astermark, Jan and Fischer, K. and Gringeri, A. and Lassila, R. and Schramm, W. and Thomas, A. and Ingerslev, J.}},
issn = {{1351-8216}},
keywords = {{treatment; principles; management; haemophilia; haemophilia care}},
language = {{eng}},
number = {{2}},
pages = {{361--374}},
publisher = {{Wiley-Blackwell}},
series = {{Haemophilia}},
title = {{European principles of haemophilia care}},
url = {{http://dx.doi.org/10.1111/j.1365-2516.2007.01625.x}},
doi = {{10.1111/j.1365-2516.2007.01625.x}},
volume = {{14}},
year = {{2008}},
}