The von Willebrand Disease Prophylaxis Network (vWD PN): Exploring a treatment concept.
(2006) In Thrombosis Research 18. p.19-22- Abstract
- The von Willebrand Disease Prophylactic Network (vWD PN) has been initiated to study the natural history of vWD bleeding, and to prospectively study the role of von Willebrand Factor (vWF) concentrate prophylaxis in vWD. Patients with all types of vWD in need of treatment with vWF concentrate will be enrolled into the study. Quality of life will be measured and safety and efficacy will be monitored at pre-determined intervals. Between February 2005 and July 18, 2005, 62 investigators from Europe and North America were participating in the vWD PN, and 61 have submitted census data. A total 5343 patients have been identified for enrolment, and of these, 991 patients were treated with plasma-derived products in the preceding 12 months, and 99... (More)
- The von Willebrand Disease Prophylactic Network (vWD PN) has been initiated to study the natural history of vWD bleeding, and to prospectively study the role of von Willebrand Factor (vWF) concentrate prophylaxis in vWD. Patients with all types of vWD in need of treatment with vWF concentrate will be enrolled into the study. Quality of life will be measured and safety and efficacy will be monitored at pre-determined intervals. Between February 2005 and July 18, 2005, 62 investigators from Europe and North America were participating in the vWD PN, and 61 have submitted census data. A total 5343 patients have been identified for enrolment, and of these, 991 patients were treated with plasma-derived products in the preceding 12 months, and 99 patients have received prophylaxis, predominantly for joint-related bleeds. The vWD PN aims to further elucidate the role of vWF concentrate prophylaxis in vWD and to identify patients most Likely to benefit from prophylaxis. (Less)
Please use this url to cite or link to this publication:
https://lup.lub.lu.se/record/154538
- author
- Berntorp, Erik LU and Abshire, Thomas
- organization
- publishing date
- 2006
- type
- Contribution to journal
- publication status
- published
- subject
- keywords
- von Willebrand disease, Willebrand factor, prophylaxis, haemorrhage, von, factor VIII
- in
- Thrombosis Research
- volume
- 18
- pages
- 19 - 22
- publisher
- Elsevier
- external identifiers
-
- wos:000238200400005
- scopus:33646056438
- ISSN
- 1879-2472
- DOI
- 10.1016/j.thromres.2006.01.016
- language
- English
- LU publication?
- yes
- id
- aa4e2b94-f71f-44ee-9603-e9d8dd7b9937 (old id 154538)
- alternative location
- http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&list_uids=16545435&dopt=Abstract
- date added to LUP
- 2016-04-01 12:12:50
- date last changed
- 2022-01-27 00:27:31
@article{aa4e2b94-f71f-44ee-9603-e9d8dd7b9937,
abstract = {{The von Willebrand Disease Prophylactic Network (vWD PN) has been initiated to study the natural history of vWD bleeding, and to prospectively study the role of von Willebrand Factor (vWF) concentrate prophylaxis in vWD. Patients with all types of vWD in need of treatment with vWF concentrate will be enrolled into the study. Quality of life will be measured and safety and efficacy will be monitored at pre-determined intervals. Between February 2005 and July 18, 2005, 62 investigators from Europe and North America were participating in the vWD PN, and 61 have submitted census data. A total 5343 patients have been identified for enrolment, and of these, 991 patients were treated with plasma-derived products in the preceding 12 months, and 99 patients have received prophylaxis, predominantly for joint-related bleeds. The vWD PN aims to further elucidate the role of vWF concentrate prophylaxis in vWD and to identify patients most Likely to benefit from prophylaxis.}},
author = {{Berntorp, Erik and Abshire, Thomas}},
issn = {{1879-2472}},
keywords = {{von Willebrand disease; Willebrand factor; prophylaxis; haemorrhage; von; factor VIII}},
language = {{eng}},
pages = {{19--22}},
publisher = {{Elsevier}},
series = {{Thrombosis Research}},
title = {{The von Willebrand Disease Prophylaxis Network (vWD PN): Exploring a treatment concept.}},
url = {{http://dx.doi.org/10.1016/j.thromres.2006.01.016}},
doi = {{10.1016/j.thromres.2006.01.016}},
volume = {{18}},
year = {{2006}},
}