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Burden of responsibility experienced by family caregivers of elderly dementia sufferers : Analyses of strain, feelings and coping strategies

Samuelsson, Ann Margret ; Annerstedt, Lena ; Elmståhl, Sölve LU ; Samuelsson, Sven Mårten and Grafström, Margareta (2001) In Scandinavian Journal of Caring Sciences 15(1). p.25-33
Abstract

Eight family caregivers of elderly dementia sufferers participated in in-depth interviews regarding their experiences of giving care. They were selected according to strain, isolation, disappointment and emotional involvement, measured on a 'caregiver burden' scale. Structural analyses of the interviews identified six categories reflecting the feelings and experiences of the caregivers. The first symptom of dementia noted by caregiving husbands was a change in personality, whereas other relatives first observed impaired memory. The dementia sufferers were deemed to be helpless, vulnerable and anxious. The quality of the relationship preceding the onset of dementia had a bearing on the carer's situation. All caregivers felt a heavy... (More)

Eight family caregivers of elderly dementia sufferers participated in in-depth interviews regarding their experiences of giving care. They were selected according to strain, isolation, disappointment and emotional involvement, measured on a 'caregiver burden' scale. Structural analyses of the interviews identified six categories reflecting the feelings and experiences of the caregivers. The first symptom of dementia noted by caregiving husbands was a change in personality, whereas other relatives first observed impaired memory. The dementia sufferers were deemed to be helpless, vulnerable and anxious. The quality of the relationship preceding the onset of dementia had a bearing on the carer's situation. All caregivers felt a heavy burden, especially early in the dementia process. Husbands sustained the heaviest burden; they expressed anger, worry, weariness, guilt, distress and isolation. The caregivers used different problem- and emotion-focused strategies to cope with their situation. Visits to the homes of the elderly, for instance by the district nurse or home help, which should include interviews with close relatives, are recommended in order to disclose early signs of dementia and to prepare further individual support for the family caregivers and their relatives suffering from dementia.

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author
; ; ; and
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
Burden, Coping strategies, Dementia, Family caregivers, Feelings, General strain
in
Scandinavian Journal of Caring Sciences
volume
15
issue
1
pages
25 - 33
publisher
Wiley-Blackwell
external identifiers
  • scopus:0035039893
ISSN
0283-9318
DOI
10.1046/j.1471-6712.2001.1510025.x
language
English
LU publication?
yes
id
1f35f88d-c823-43f5-be0d-bd7520fd8251
date added to LUP
2019-06-19 10:32:32
date last changed
2020-06-03 05:02:40
@article{1f35f88d-c823-43f5-be0d-bd7520fd8251,
  abstract     = {<p>Eight family caregivers of elderly dementia sufferers participated in in-depth interviews regarding their experiences of giving care. They were selected according to strain, isolation, disappointment and emotional involvement, measured on a 'caregiver burden' scale. Structural analyses of the interviews identified six categories reflecting the feelings and experiences of the caregivers. The first symptom of dementia noted by caregiving husbands was a change in personality, whereas other relatives first observed impaired memory. The dementia sufferers were deemed to be helpless, vulnerable and anxious. The quality of the relationship preceding the onset of dementia had a bearing on the carer's situation. All caregivers felt a heavy burden, especially early in the dementia process. Husbands sustained the heaviest burden; they expressed anger, worry, weariness, guilt, distress and isolation. The caregivers used different problem- and emotion-focused strategies to cope with their situation. Visits to the homes of the elderly, for instance by the district nurse or home help, which should include interviews with close relatives, are recommended in order to disclose early signs of dementia and to prepare further individual support for the family caregivers and their relatives suffering from dementia.</p>},
  author       = {Samuelsson, Ann Margret and Annerstedt, Lena and Elmståhl, Sölve and Samuelsson, Sven Mårten and Grafström, Margareta},
  issn         = {0283-9318},
  language     = {eng},
  month        = {01},
  number       = {1},
  pages        = {25--33},
  publisher    = {Wiley-Blackwell},
  series       = {Scandinavian Journal of Caring Sciences},
  title        = {Burden of responsibility experienced by family caregivers of elderly dementia sufferers : Analyses of strain, feelings and coping strategies},
  url          = {http://dx.doi.org/10.1046/j.1471-6712.2001.1510025.x},
  doi          = {10.1046/j.1471-6712.2001.1510025.x},
  volume       = {15},
  year         = {2001},
}