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Systemic lupus erythematosus and cardiac risk factors: medical record documentation and patient adherence

Bengtsson, Christine LU ; Bengtsson, Anders LU ; Costenbader, K. H.; Jönsen, Andreas LU ; Rantapaa-Dahlqvist, S.; Sturfelt, Gunnar LU and Nived, Ola LU (2011) In Lupus 20(10). p.1057-1062
Abstract
This study explores patients' knowledge of cardiac risk factors (CRFs), analyses how information and advice about CRFs are documented in clinical practice, and assesses patient adherence to received instructions to decrease CRFs. Systemic lupus erythematosus (SLE) patients with >= 4 ACR criteria participated through completing a validated cardiovascular health questionnaire (CHQ). Kappa statistics were used to compare medical records with the self-reported CHQ (agreement) and to evaluate adherence. Two hundred and eleven (72%) of the known patients with SLE participated. The mean age of the patients was 55 years. More than 70% of the SLE patients considered hypertension, obesity, smoking and hypercholesterolaemia to be very important... (More)
This study explores patients' knowledge of cardiac risk factors (CRFs), analyses how information and advice about CRFs are documented in clinical practice, and assesses patient adherence to received instructions to decrease CRFs. Systemic lupus erythematosus (SLE) patients with >= 4 ACR criteria participated through completing a validated cardiovascular health questionnaire (CHQ). Kappa statistics were used to compare medical records with the self-reported CHQ (agreement) and to evaluate adherence. Two hundred and eleven (72%) of the known patients with SLE participated. The mean age of the patients was 55 years. More than 70% of the SLE patients considered hypertension, obesity, smoking and hypercholesterolaemia to be very important CRFs. The agreement between medical record documentation and patients' reports was moderate for hypertension, overweight and hypercholesterolaemia (kappa 0.42-0.60) but substantial for diabetes (kappa 0.66). Patients' self-reported adherence to advice they had received regarding medication was substantial to perfect (kappa 0.65-1.0). For lifestyle changes in patients with hypertension and overweight, adherence was only fair to moderate (kappa 0.13-0.47). Swedish SLE patients' awareness of traditional CRFs was good in this study. However, the agreement between patients' self-reports and medical record documentation of CRF profiles, and patients' adherence to medical advice to CRF profiles, could be improved. Lupus (2011) 20, 1057-1062. (Less)
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author
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
adherence, agreement, cardiovascular risk factor, patient record, systemic lupus erythematosus
in
Lupus
volume
20
issue
10
pages
1057 - 1062
publisher
SAGE Publications Ltd
external identifiers
  • wos:000294839100008
  • scopus:80052875272
ISSN
0961-2033
DOI
10.1177/0961203311403639
language
English
LU publication?
yes
id
fccc5445-05b7-48f6-9a05-fa5a54001c33 (old id 2186795)
date added to LUP
2011-11-01 07:51:42
date last changed
2017-01-01 03:15:23
@article{fccc5445-05b7-48f6-9a05-fa5a54001c33,
  abstract     = {This study explores patients' knowledge of cardiac risk factors (CRFs), analyses how information and advice about CRFs are documented in clinical practice, and assesses patient adherence to received instructions to decrease CRFs. Systemic lupus erythematosus (SLE) patients with >= 4 ACR criteria participated through completing a validated cardiovascular health questionnaire (CHQ). Kappa statistics were used to compare medical records with the self-reported CHQ (agreement) and to evaluate adherence. Two hundred and eleven (72%) of the known patients with SLE participated. The mean age of the patients was 55 years. More than 70% of the SLE patients considered hypertension, obesity, smoking and hypercholesterolaemia to be very important CRFs. The agreement between medical record documentation and patients' reports was moderate for hypertension, overweight and hypercholesterolaemia (kappa 0.42-0.60) but substantial for diabetes (kappa 0.66). Patients' self-reported adherence to advice they had received regarding medication was substantial to perfect (kappa 0.65-1.0). For lifestyle changes in patients with hypertension and overweight, adherence was only fair to moderate (kappa 0.13-0.47). Swedish SLE patients' awareness of traditional CRFs was good in this study. However, the agreement between patients' self-reports and medical record documentation of CRF profiles, and patients' adherence to medical advice to CRF profiles, could be improved. Lupus (2011) 20, 1057-1062.},
  author       = {Bengtsson, Christine and Bengtsson, Anders and Costenbader, K. H. and Jönsen, Andreas and Rantapaa-Dahlqvist, S. and Sturfelt, Gunnar and Nived, Ola},
  issn         = {0961-2033},
  keyword      = {adherence,agreement,cardiovascular risk factor,patient record,systemic lupus erythematosus},
  language     = {eng},
  number       = {10},
  pages        = {1057--1062},
  publisher    = {SAGE Publications Ltd},
  series       = {Lupus},
  title        = {Systemic lupus erythematosus and cardiac risk factors: medical record documentation and patient adherence},
  url          = {http://dx.doi.org/10.1177/0961203311403639},
  volume       = {20},
  year         = {2011},
}