Quality of life in adult patients with haemophilia - a single centre experience from Sweden.
(2012) In Haemophilia 18(4). p.527-531- Abstract
- Summary: Increased or maintained health and quality of life (HRQoL) are essential goals in health care among patients with a chronic disease. To gain an understanding of HRQoL in patients with haemophilia at the Haemophilia Treatment Centre in Malmö, Sweden, patients seen from 2004-2008 were asked to complete the Short form Health Survey, SF-36, also answering to what extent haemophilia, physically and mentally, interferes with their daily life at their annual check-up. Data were extracted from the UMAS Haemophilia Database. Interference of haemophilia in daily life was estimated using a Visual Analogue Scale. A total of 105/144 haemophilia patients were included in the study (73%); 28 mildly, 21 moderately and 56 severely affected. The... (More)
- Summary: Increased or maintained health and quality of life (HRQoL) are essential goals in health care among patients with a chronic disease. To gain an understanding of HRQoL in patients with haemophilia at the Haemophilia Treatment Centre in Malmö, Sweden, patients seen from 2004-2008 were asked to complete the Short form Health Survey, SF-36, also answering to what extent haemophilia, physically and mentally, interferes with their daily life at their annual check-up. Data were extracted from the UMAS Haemophilia Database. Interference of haemophilia in daily life was estimated using a Visual Analogue Scale. A total of 105/144 haemophilia patients were included in the study (73%); 28 mildly, 21 moderately and 56 severely affected. The median age of patients at study entry was 44.0 years (range 18-84 years). The comparison of SF-36 data of Swedish haemophilia patients with the general Swedish male population yielded no significant differences in age groups 15-24, 25-34 and 65-74 years. Patients in age groups 35-44 years, 45-54 years and 55-64 years were significantly impaired in some of their HRQoL domains. For severely affected patients who filled in SF-36 over a period of 5 years no statistical differences in HRQoL were found. For patients undergoing orthopaedic surgery HRQoL increased in most SF-36 domains. Patients reported in general on the VAS that they feel 'somehow' interfered in their daily life due to haemophilia. The results indicate a need for continuous monitoring of HRQoL to identify an increased need of care in the ageing haemophilia population. (Less)
Please use this url to cite or link to this publication:
https://lup.lub.lu.se/record/2432057
- author
- Lindvall, Karin LU ; Von Mackensen, S and Berntorp, Erik LU
- organization
- publishing date
- 2012
- type
- Contribution to journal
- publication status
- published
- subject
- in
- Haemophilia
- volume
- 18
- issue
- 4
- pages
- 527 - 531
- publisher
- Wiley-Blackwell
- external identifiers
-
- wos:000305824400018
- pmid:22404485
- scopus:84863208012
- pmid:22404485
- ISSN
- 1351-8216
- DOI
- 10.1111/j.1365-2516.2012.02765.x
- language
- English
- LU publication?
- yes
- id
- 49b19ce2-3809-424f-9e0c-9941fa61fa59 (old id 2432057)
- alternative location
- http://www.ncbi.nlm.nih.gov/pubmed/22404485?dopt=Abstract
- date added to LUP
- 2016-04-01 09:59:47
- date last changed
- 2022-08-05 02:15:22
@article{49b19ce2-3809-424f-9e0c-9941fa61fa59, abstract = {{Summary: Increased or maintained health and quality of life (HRQoL) are essential goals in health care among patients with a chronic disease. To gain an understanding of HRQoL in patients with haemophilia at the Haemophilia Treatment Centre in Malmö, Sweden, patients seen from 2004-2008 were asked to complete the Short form Health Survey, SF-36, also answering to what extent haemophilia, physically and mentally, interferes with their daily life at their annual check-up. Data were extracted from the UMAS Haemophilia Database. Interference of haemophilia in daily life was estimated using a Visual Analogue Scale. A total of 105/144 haemophilia patients were included in the study (73%); 28 mildly, 21 moderately and 56 severely affected. The median age of patients at study entry was 44.0 years (range 18-84 years). The comparison of SF-36 data of Swedish haemophilia patients with the general Swedish male population yielded no significant differences in age groups 15-24, 25-34 and 65-74 years. Patients in age groups 35-44 years, 45-54 years and 55-64 years were significantly impaired in some of their HRQoL domains. For severely affected patients who filled in SF-36 over a period of 5 years no statistical differences in HRQoL were found. For patients undergoing orthopaedic surgery HRQoL increased in most SF-36 domains. Patients reported in general on the VAS that they feel 'somehow' interfered in their daily life due to haemophilia. The results indicate a need for continuous monitoring of HRQoL to identify an increased need of care in the ageing haemophilia population.}}, author = {{Lindvall, Karin and Von Mackensen, S and Berntorp, Erik}}, issn = {{1351-8216}}, language = {{eng}}, number = {{4}}, pages = {{527--531}}, publisher = {{Wiley-Blackwell}}, series = {{Haemophilia}}, title = {{Quality of life in adult patients with haemophilia - a single centre experience from Sweden.}}, url = {{http://dx.doi.org/10.1111/j.1365-2516.2012.02765.x}}, doi = {{10.1111/j.1365-2516.2012.02765.x}}, volume = {{18}}, year = {{2012}}, }