Hospital-based home care for children with cancer: Feasibility and psychosocial impact on children and their families
(2013) In Pediatric Blood & Cancer 60(5). p.865-872- Abstract
- Background To assess the feasibility and psychosocial impact of a hospital-based home care (HBHC) program for children with cancer. Procedure A HBHC program was carried out with 51 children (018 years) with cancer to assess its feasibility in terms of satisfaction, care preferences, safety, and cost. A controlled trial was conducted to assess children's health-related quality of life (HRQOL) using the parent-reported and self-reported PedsQL Generic Core Scale and PedsQL Cancer Module, and the psychosocial impact on the family by PedsQL Family Impact Module comprising a subsample of 28 children and 43 parents in the home care group, and 47 children and 66 parents receiving standard hospital care. Results All parents in the HBHC program... (More)
- Background To assess the feasibility and psychosocial impact of a hospital-based home care (HBHC) program for children with cancer. Procedure A HBHC program was carried out with 51 children (018 years) with cancer to assess its feasibility in terms of satisfaction, care preferences, safety, and cost. A controlled trial was conducted to assess children's health-related quality of life (HRQOL) using the parent-reported and self-reported PedsQL Generic Core Scale and PedsQL Cancer Module, and the psychosocial impact on the family by PedsQL Family Impact Module comprising a subsample of 28 children and 43 parents in the home care group, and 47 children and 66 parents receiving standard hospital care. Results All parents in the HBHC program were satisfied and preferred home care. There were no serious adverse events associated with HBHC, and costs did not increase. When adjusting for age, gender, diagnosis and time since diagnosis, we found significant higher HRQOL scores in parent-reported physical health (P=0.04; 95% confidence interval (CI): 0.219.5) and worry (P=0.04; 95% CI: 0.420.6) in the home-care group indicating better physical health and less worry for children in the home-care group. No significant difference was found in the Family Impact Module. Conclusion This study indicates that HBHC is a feasible alternative to hospital care for children with cancer, and is greatly preferred by parents. Specific aspects of children's HRQOL may be improved with HBHC and the psychosocial burden on the family does not increase. Pediatr Blood Cancer 2013; 60: 865872. (c) 2013 Wiley Periodicals, Inc. (Less)
Please use this url to cite or link to this publication:
https://lup.lub.lu.se/record/3635972
- author
- Hansson, Helena ; Kjaergaard, Hanne ; Johansen, Christoffer ; Hallström, Inger LU ; Christensen, Jane ; Madsen, Marianne and Schmiegelow, Kjeld
- organization
- publishing date
- 2013
- type
- Contribution to journal
- publication status
- published
- subject
- keywords
- chemotherapy, home care, pediatric oncology, quality of life
- in
- Pediatric Blood & Cancer
- volume
- 60
- issue
- 5
- pages
- 865 - 872
- publisher
- John Wiley & Sons Inc.
- external identifiers
-
- wos:000316291700025
- scopus:84874979993
- pmid:23335455
- ISSN
- 1545-5017
- DOI
- 10.1002/pbc.24474
- project
- Children with cancer
- LUC3 - Lund University Child Centered Care
- Hospital-based Home Care for children with long-term illness
- language
- English
- LU publication?
- yes
- id
- 37573f58-cff2-43af-aa8f-5bd382739067 (old id 3635972)
- date added to LUP
- 2016-04-01 09:52:58
- date last changed
- 2023-05-03 16:18:53
@article{37573f58-cff2-43af-aa8f-5bd382739067, abstract = {{Background To assess the feasibility and psychosocial impact of a hospital-based home care (HBHC) program for children with cancer. Procedure A HBHC program was carried out with 51 children (018 years) with cancer to assess its feasibility in terms of satisfaction, care preferences, safety, and cost. A controlled trial was conducted to assess children's health-related quality of life (HRQOL) using the parent-reported and self-reported PedsQL Generic Core Scale and PedsQL Cancer Module, and the psychosocial impact on the family by PedsQL Family Impact Module comprising a subsample of 28 children and 43 parents in the home care group, and 47 children and 66 parents receiving standard hospital care. Results All parents in the HBHC program were satisfied and preferred home care. There were no serious adverse events associated with HBHC, and costs did not increase. When adjusting for age, gender, diagnosis and time since diagnosis, we found significant higher HRQOL scores in parent-reported physical health (P=0.04; 95% confidence interval (CI): 0.219.5) and worry (P=0.04; 95% CI: 0.420.6) in the home-care group indicating better physical health and less worry for children in the home-care group. No significant difference was found in the Family Impact Module. Conclusion This study indicates that HBHC is a feasible alternative to hospital care for children with cancer, and is greatly preferred by parents. Specific aspects of children's HRQOL may be improved with HBHC and the psychosocial burden on the family does not increase. Pediatr Blood Cancer 2013; 60: 865872. (c) 2013 Wiley Periodicals, Inc.}}, author = {{Hansson, Helena and Kjaergaard, Hanne and Johansen, Christoffer and Hallström, Inger and Christensen, Jane and Madsen, Marianne and Schmiegelow, Kjeld}}, issn = {{1545-5017}}, keywords = {{chemotherapy; home care; pediatric oncology; quality of life}}, language = {{eng}}, number = {{5}}, pages = {{865--872}}, publisher = {{John Wiley & Sons Inc.}}, series = {{Pediatric Blood & Cancer}}, title = {{Hospital-based home care for children with cancer: Feasibility and psychosocial impact on children and their families}}, url = {{http://dx.doi.org/10.1002/pbc.24474}}, doi = {{10.1002/pbc.24474}}, volume = {{60}}, year = {{2013}}, }