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The formal care costs of dementia : a longitudinal study using Swedish register data

Zilling, Jennifer LU orcid ; Gerdtham, Ulf-G LU orcid ; Jarl, Johan LU orcid ; Saha, Sanjib LU and Persson, Sofie LU (2024) In European Journal of Health Economics
Abstract

BACKGROUND: This study investigates the excess costs of dementia from healthcare, social care services, and prescription drugs 3 years before to 6 years after diagnosis. Further, sociodemographic cost differences are explored.

METHODS: Using Swedish register data from 2013 to 2016 to compare individuals diagnosed with dementia (n = 15,339) with population controls, the excess formal care costs for people with a dementia diagnosis are obtained with longitudinal regression analysis.

RESULTS: People with dementia incur higher formal care costs for all years studied compared to people without dementia. The excess costs vary from €3400 3 years before diagnosis to €49,700 6 years after diagnosis. The costs are mainly driven by... (More)

BACKGROUND: This study investigates the excess costs of dementia from healthcare, social care services, and prescription drugs 3 years before to 6 years after diagnosis. Further, sociodemographic cost differences are explored.

METHODS: Using Swedish register data from 2013 to 2016 to compare individuals diagnosed with dementia (n = 15,339) with population controls, the excess formal care costs for people with a dementia diagnosis are obtained with longitudinal regression analysis.

RESULTS: People with dementia incur higher formal care costs for all years studied compared to people without dementia. The excess costs vary from €3400 3 years before diagnosis to €49,700 6 years after diagnosis. The costs are mainly driven by institutional care, and solitary living is a strong predictor of high excess costs.

CONCLUSION: The results show that the formal care costs of individuals with dementia are substantial, and that the economic burden of dementia in Sweden is larger than previously estimated.

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author
; ; ; and
organization
publishing date
type
Contribution to journal
publication status
epub
subject
in
European Journal of Health Economics
publisher
Springer
external identifiers
  • scopus:85200033522
  • pmid:39080093
ISSN
1618-7601
DOI
10.1007/s10198-024-01707-w
language
English
LU publication?
yes
additional info
© 2024. The Author(s).
id
3a9699d4-ff7f-4844-a951-21eca06d286a
date added to LUP
2024-08-01 07:56:42
date last changed
2025-05-12 00:35:07
@article{3a9699d4-ff7f-4844-a951-21eca06d286a,
  abstract     = {{<p>BACKGROUND: This study investigates the excess costs of dementia from healthcare, social care services, and prescription drugs 3 years before to 6 years after diagnosis. Further, sociodemographic cost differences are explored.</p><p>METHODS: Using Swedish register data from 2013 to 2016 to compare individuals diagnosed with dementia (n = 15,339) with population controls, the excess formal care costs for people with a dementia diagnosis are obtained with longitudinal regression analysis.</p><p>RESULTS: People with dementia incur higher formal care costs for all years studied compared to people without dementia. The excess costs vary from €3400 3 years before diagnosis to €49,700 6 years after diagnosis. The costs are mainly driven by institutional care, and solitary living is a strong predictor of high excess costs.</p><p>CONCLUSION: The results show that the formal care costs of individuals with dementia are substantial, and that the economic burden of dementia in Sweden is larger than previously estimated.</p>}},
  author       = {{Zilling, Jennifer and Gerdtham, Ulf-G and Jarl, Johan and Saha, Sanjib and Persson, Sofie}},
  issn         = {{1618-7601}},
  language     = {{eng}},
  month        = {{07}},
  publisher    = {{Springer}},
  series       = {{European Journal of Health Economics}},
  title        = {{The formal care costs of dementia : a longitudinal study using Swedish register data}},
  url          = {{http://dx.doi.org/10.1007/s10198-024-01707-w}},
  doi          = {{10.1007/s10198-024-01707-w}},
  year         = {{2024}},
}