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Family caregiving in dementia : Prediction of caregiver burden 12 months after relocation to group-living care

Elmståhl, Sölve LU ; Ingvad, Bengt and Annerstedt, Lena (1998) In International Psychogeriatrics 10(2). p.127-146
Abstract

The strain of caregiving associated with the care of demented persons living at home often continues after relocation, and group-living-care units (GL), designed for a small number of subjects, have been developed. The aim was to prospectively describe caregiver burden in relationship to symptoms of patients with dementia after relocation to GL. Sixty-four caregivers and 64 demented patients were assessed before, 6 months after, and 12 months after relocation. Thirty-six caregivers were children, 7 were spouses, and 21 were others. Validated scales were used for caregiver burden and dementia symptoms. Total burden of caregivers decreased after 12 months, but the degree of isolation was unchanged and feeling of disappointment increased... (More)

The strain of caregiving associated with the care of demented persons living at home often continues after relocation, and group-living-care units (GL), designed for a small number of subjects, have been developed. The aim was to prospectively describe caregiver burden in relationship to symptoms of patients with dementia after relocation to GL. Sixty-four caregivers and 64 demented patients were assessed before, 6 months after, and 12 months after relocation. Thirty-six caregivers were children, 7 were spouses, and 21 were others. Validated scales were used for caregiver burden and dementia symptoms. Total burden of caregivers decreased after 12 months, but the degree of isolation was unchanged and feeling of disappointment increased significantly. The burden was not related to changes of activities of daily life or disorientation. Patients' lack of vitality at relocation independently predicted caregiver's burden 1 year later. Hallucinations and changes of symptoms during the first year were associated with less caregiver burden, probably due to greater detachment of the relationship. The caregiver burden remains 1 year after relocation and any support to the caregiver should consider patients' symptoms, especially lack of vitality.

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author
; and
organization
publishing date
type
Contribution to journal
publication status
published
subject
in
International Psychogeriatrics
volume
10
issue
2
pages
20 pages
publisher
Cambridge University Press
external identifiers
  • scopus:0031878503
  • pmid:9677500
ISSN
1041-6102
DOI
10.1017/S1041610298005249
language
English
LU publication?
yes
id
3c92b153-f2d9-4e63-9be0-0a3485a9c66d
date added to LUP
2019-06-19 10:33:43
date last changed
2024-04-16 11:55:27
@article{3c92b153-f2d9-4e63-9be0-0a3485a9c66d,
  abstract     = {{<p>The strain of caregiving associated with the care of demented persons living at home often continues after relocation, and group-living-care units (GL), designed for a small number of subjects, have been developed. The aim was to prospectively describe caregiver burden in relationship to symptoms of patients with dementia after relocation to GL. Sixty-four caregivers and 64 demented patients were assessed before, 6 months after, and 12 months after relocation. Thirty-six caregivers were children, 7 were spouses, and 21 were others. Validated scales were used for caregiver burden and dementia symptoms. Total burden of caregivers decreased after 12 months, but the degree of isolation was unchanged and feeling of disappointment increased significantly. The burden was not related to changes of activities of daily life or disorientation. Patients' lack of vitality at relocation independently predicted caregiver's burden 1 year later. Hallucinations and changes of symptoms during the first year were associated with less caregiver burden, probably due to greater detachment of the relationship. The caregiver burden remains 1 year after relocation and any support to the caregiver should consider patients' symptoms, especially lack of vitality.</p>}},
  author       = {{Elmståhl, Sölve and Ingvad, Bengt and Annerstedt, Lena}},
  issn         = {{1041-6102}},
  language     = {{eng}},
  month        = {{06}},
  number       = {{2}},
  pages        = {{127--146}},
  publisher    = {{Cambridge University Press}},
  series       = {{International Psychogeriatrics}},
  title        = {{Family caregiving in dementia : Prediction of caregiver burden 12 months after relocation to group-living care}},
  url          = {{http://dx.doi.org/10.1017/S1041610298005249}},
  doi          = {{10.1017/S1041610298005249}},
  volume       = {{10}},
  year         = {{1998}},
}