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Advancing international comparison of pharmaceutical industry funding of patient advocacy: Focus on Denmark

Mulinari, Shai LU ; Pashley, Dylan LU and Ozieranski, Piotr (2022) In Health Policy 126(12). p.1256-1262
Abstract
Pharmaceutical industry funding of patient organizations raises ethical challenges related to patient engagement in healthcare due to fears of commercial agendas influencing patient advocacy and creating industry-driven inequalities across patient organizations. We contribute to an international body of knowledge on patient organization–industry relations by analyzing all payments reported by companies in Denmark over a six-year period, 2014–2019. We performed descriptive analyses calculating the number, value, and distribution of payments for various units of analysis: all companies and patient organizations; individual companies and patient organizations; and the broader disease area (e.g., cancer) and narrower disease (e.g., breast... (More)
Pharmaceutical industry funding of patient organizations raises ethical challenges related to patient engagement in healthcare due to fears of commercial agendas influencing patient advocacy and creating industry-driven inequalities across patient organizations. We contribute to an international body of knowledge on patient organization–industry relations by analyzing all payments reported by companies in Denmark over a six-year period, 2014–2019. We performed descriptive analyses calculating the number, value, and distribution of payments for various units of analysis: all companies and patient organizations; individual companies and patient organizations; and the broader disease area (e.g., cancer) and narrower disease (e.g., breast cancer). Fifty-one companies reported paying €8,826,916 to 84 patient organizations. As in previously studied countries, the funding was dominated by a relatively small number of funders and recipients, and commercially high-profile diseases attracted most of the funding. Nevertheless, our study also highlighted the arguably concerning dominance of one company in Denmark, both at the level of overall funding and in funding specific patient organizations, during a time of great policy contention surrounding one of its drugs, the world’s top-selling medicine; i.e., switching patients to cheaper biosimilars to save big money for the healthcare system. Patient organizations have reasons to rethink some collaborations with companies, especially during policy contentions, and governments should ensure equitable funding to counteract risks posed by the concentration of industry funding. (Less)
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author
; and
organization
publishing date
type
Contribution to journal
publication status
published
subject
in
Health Policy
volume
126
issue
12
pages
1256 - 1262
publisher
Elsevier
external identifiers
  • scopus:85141796859
  • pmid:36371347
ISSN
1872-6054
DOI
10.1016/j.healthpol.2022.11.003
project
Following the money: cross-national study of pharmaceutical industry payments to medical associations and patient organisations
language
English
LU publication?
yes
id
41287bcd-478b-4d9a-be24-9dd62aec025a
date added to LUP
2022-10-20 10:04:45
date last changed
2023-04-09 07:27:08
@article{41287bcd-478b-4d9a-be24-9dd62aec025a,
  abstract     = {{Pharmaceutical industry funding of patient organizations raises ethical challenges related to patient engagement in healthcare due to fears of commercial agendas influencing patient advocacy and creating industry-driven inequalities across patient organizations. We contribute to an international body of knowledge on patient organization–industry relations by analyzing all payments reported by companies in Denmark over a six-year period, 2014–2019. We performed descriptive analyses calculating the number, value, and distribution of payments for various units of analysis: all companies and patient organizations; individual companies and patient organizations; and the broader disease area (e.g., cancer) and narrower disease (e.g., breast cancer). Fifty-one companies reported paying €8,826,916 to 84 patient organizations. As in previously studied countries, the funding was dominated by a relatively small number of funders and recipients, and commercially high-profile diseases attracted most of the funding. Nevertheless, our study also highlighted the arguably concerning dominance of one company in Denmark, both at the level of overall funding and in funding specific patient organizations, during a time of great policy contention surrounding one of its drugs, the world’s top-selling medicine; i.e., switching patients to cheaper biosimilars to save big money for the healthcare system. Patient organizations have reasons to rethink some collaborations with companies, especially during policy contentions, and governments should ensure equitable funding to counteract risks posed by the concentration of industry funding.}},
  author       = {{Mulinari, Shai and Pashley, Dylan and Ozieranski, Piotr}},
  issn         = {{1872-6054}},
  language     = {{eng}},
  month        = {{11}},
  number       = {{12}},
  pages        = {{1256--1262}},
  publisher    = {{Elsevier}},
  series       = {{Health Policy}},
  title        = {{Advancing international comparison of pharmaceutical industry funding of patient advocacy: Focus on Denmark}},
  url          = {{https://lup.lub.lu.se/search/files/128145411/1_s2.0_S0168851022002834_main.pdf}},
  doi          = {{10.1016/j.healthpol.2022.11.003}},
  volume       = {{126}},
  year         = {{2022}},
}