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The Nordic medical birth registers - a potential goldmine for clinical research

Langhoff-Roos, Jens; Krebs, Lone; Klungsoyr, Kari; Bjarnadottir, Ragnheidur I.; Källén, Karin LU ; Tapper, Anna-Maija; Jakobsson, Maija; Bordahl, Per E.; Lindqvist, Pelle G. and Gottvall, Karin, et al. (2014) In Acta Obstetricia et Gynecologica Scandinavica 93(2). p.132-137
Abstract
The Nordic medical birth registers have long been used for valuable clinical research. Their collection of data for more than four decades offers unusual possibilities for research across generations. At the same time, serum and blotting paper blood samples have been stored from most neonates. Two large cohorts (approximately 100000 births) in Denmark and Norway have been described by questionnaires, interviews and collection of biological samples (blood, urine and milk teeth), as well as a systematic prospective follow-up of the offspring. National patient registers provide information on preceding, underlying and present health problems of the parents and their offspring. Researchers may, with permission from the national authorities,... (More)
The Nordic medical birth registers have long been used for valuable clinical research. Their collection of data for more than four decades offers unusual possibilities for research across generations. At the same time, serum and blotting paper blood samples have been stored from most neonates. Two large cohorts (approximately 100000 births) in Denmark and Norway have been described by questionnaires, interviews and collection of biological samples (blood, urine and milk teeth), as well as a systematic prospective follow-up of the offspring. National patient registers provide information on preceding, underlying and present health problems of the parents and their offspring. Researchers may, with permission from the national authorities, obtain access to individualized or anonymized data from the registers and tissue-banks. These data allow for multivariate analyses but their usefulness depends on knowledge of the specific registers and biological sample banks and on proper validation of the registers. (Less)
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organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
Register research, obstetrics, medical birth register, validation, bio, banks
in
Acta Obstetricia et Gynecologica Scandinavica
volume
93
issue
2
pages
132 - 137
publisher
Wiley-Blackwell
external identifiers
  • wos:000329746900003
  • scopus:84892695845
ISSN
1600-0412
DOI
10.1111/aogs.12302
language
English
LU publication?
yes
id
4aa39681-6239-4964-9df4-d6c864cffc28 (old id 4319404)
date added to LUP
2014-03-03 07:57:09
date last changed
2017-11-19 03:41:41
@misc{4aa39681-6239-4964-9df4-d6c864cffc28,
  abstract     = {The Nordic medical birth registers have long been used for valuable clinical research. Their collection of data for more than four decades offers unusual possibilities for research across generations. At the same time, serum and blotting paper blood samples have been stored from most neonates. Two large cohorts (approximately 100000 births) in Denmark and Norway have been described by questionnaires, interviews and collection of biological samples (blood, urine and milk teeth), as well as a systematic prospective follow-up of the offspring. National patient registers provide information on preceding, underlying and present health problems of the parents and their offspring. Researchers may, with permission from the national authorities, obtain access to individualized or anonymized data from the registers and tissue-banks. These data allow for multivariate analyses but their usefulness depends on knowledge of the specific registers and biological sample banks and on proper validation of the registers.},
  author       = {Langhoff-Roos, Jens and Krebs, Lone and Klungsoyr, Kari and Bjarnadottir, Ragnheidur I. and Källén, Karin and Tapper, Anna-Maija and Jakobsson, Maija and Bordahl, Per E. and Lindqvist, Pelle G. and Gottvall, Karin and Colmorn, Lotte Berdiin and Gissler, Mika},
  issn         = {1600-0412},
  keyword      = {Register research,obstetrics,medical birth register,validation,bio,banks},
  language     = {eng},
  number       = {2},
  pages        = {132--137},
  publisher    = {Wiley-Blackwell},
  series       = {Acta Obstetricia et Gynecologica Scandinavica},
  title        = {The Nordic medical birth registers - a potential goldmine for clinical research},
  url          = {http://dx.doi.org/10.1111/aogs.12302},
  volume       = {93},
  year         = {2014},
}