Advanced

Actions helping expressed or anticipated needs : Patients with advanced cancer and their family caregivers’ experiences of specialist palliative home care teams

Klarare, Anna; Rasmussen, Birgit H. LU ; Fossum, Bjöörn; Hansson, Johan; Fürst, Carl Johan LU and Lundh Hagelin, Carina (2018) In European Journal of Cancer Care 27(6).
Abstract

Patients with advanced cancer and family caregivers in palliative care face physical, psychological, social and existential challenges, much of the time home alone. Specialist palliative home care team services can be instrumental for sense of security in an uncertain situation. The aim of this study was to describe patients’ and family caregivers’ experiences of specialist palliative home care team actions that are identified by the participants as helping or hindering interventions. Six patients and seven family caregivers were interviewed using the enhanced critical incident technique. Ninety-five critical incidents and wish list items were identified. Providing adequate resources, keeping promises and being reliable, and creating... (More)

Patients with advanced cancer and family caregivers in palliative care face physical, psychological, social and existential challenges, much of the time home alone. Specialist palliative home care team services can be instrumental for sense of security in an uncertain situation. The aim of this study was to describe patients’ and family caregivers’ experiences of specialist palliative home care team actions that are identified by the participants as helping or hindering interventions. Six patients and seven family caregivers were interviewed using the enhanced critical incident technique. Ninety-five critical incidents and wish list items were identified. Providing adequate resources, keeping promises and being reliable, and creating partnerships are actions by specialist palliative care teams that patients and family caregivers experienced as helping in meeting expressed or anticipated needs in patients and family caregivers. Being reliable and including patients and family caregivers in partnerships help to continue with daily life, even though death may be close. Unmet needs resulted in experiences of disrespect or violation of personal space/integrity.

(Less)
Please use this url to cite or link to this publication:
author
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
family caregivers, home care services, palliative care, patient, qualitative method, team
in
European Journal of Cancer Care
volume
27
issue
6
publisher
John Wiley & Sons
external identifiers
  • scopus:85054658425
ISSN
0961-5423
DOI
10.1111/ecc.12948
language
English
LU publication?
yes
id
4533415b-0cc4-4e05-865c-3968293c8f35
date added to LUP
2018-11-13 09:44:53
date last changed
2019-01-14 18:10:41
@article{4533415b-0cc4-4e05-865c-3968293c8f35,
  abstract     = {<p>Patients with advanced cancer and family caregivers in palliative care face physical, psychological, social and existential challenges, much of the time home alone. Specialist palliative home care team services can be instrumental for sense of security in an uncertain situation. The aim of this study was to describe patients’ and family caregivers’ experiences of specialist palliative home care team actions that are identified by the participants as helping or hindering interventions. Six patients and seven family caregivers were interviewed using the enhanced critical incident technique. Ninety-five critical incidents and wish list items were identified. Providing adequate resources, keeping promises and being reliable, and creating partnerships are actions by specialist palliative care teams that patients and family caregivers experienced as helping in meeting expressed or anticipated needs in patients and family caregivers. Being reliable and including patients and family caregivers in partnerships help to continue with daily life, even though death may be close. Unmet needs resulted in experiences of disrespect or violation of personal space/integrity.</p>},
  articleno    = {e12948},
  author       = {Klarare, Anna and Rasmussen, Birgit H. and Fossum, Bjöörn and Hansson, Johan and Fürst, Carl Johan and Lundh Hagelin, Carina},
  issn         = {0961-5423},
  keyword      = {family caregivers,home care services,palliative care,patient,qualitative method,team},
  language     = {eng},
  month        = {10},
  number       = {6},
  publisher    = {John Wiley & Sons},
  series       = {European Journal of Cancer Care},
  title        = {Actions helping expressed or anticipated needs : Patients with advanced cancer and their family caregivers’ experiences of specialist palliative home care teams},
  url          = {http://dx.doi.org/10.1111/ecc.12948},
  volume       = {27},
  year         = {2018},
}