Advanced

Perceptions of received information, social support, and coping in patients with pulmonary arterial hypertension or chronic thromboembolic pulmonary hypertension.

Ivarsson, Bodil LU ; Ekmehag, Björn LU ; Hesselstrand, Roger LU ; Rådegran, Göran LU and Sjöberg, Trygve LU (2014) In Clinical medicine insights. Circulatory, respiratory and pulmonary medicine 8. p.21-28
Abstract
Patients with a life-limiting diagnosis of pulmonary arterial hypertension (PAH) or chronic thromboembolic pulmonary hypertension (CTEPH) need disease-specific information, ability to cope, and functioning social networks. This cohort study investigated the experiences of PAH and CTEPH patients who received information about their diagnosis, treatment, and management, in addition to coping and social support. Sixty-eight adult patients (mean ± SD, age 67 ± 14; 66% women) were included. A total of 54% of the patients wanted more information. Patients received information mostly in areas concerning medical test procedures, the diagnosis, disease severity, possible disease causes, and how to manage their disease. Coping ability was... (More)
Patients with a life-limiting diagnosis of pulmonary arterial hypertension (PAH) or chronic thromboembolic pulmonary hypertension (CTEPH) need disease-specific information, ability to cope, and functioning social networks. This cohort study investigated the experiences of PAH and CTEPH patients who received information about their diagnosis, treatment, and management, in addition to coping and social support. Sixty-eight adult patients (mean ± SD, age 67 ± 14; 66% women) were included. A total of 54% of the patients wanted more information. Patients received information mostly in areas concerning medical test procedures, the diagnosis, disease severity, possible disease causes, and how to manage their disease. Coping ability was significantly better in patients who were satisfied with the received information (P = 0.0045). The information given to PAH or CTEPH patients and their communication with healthcare professionals can be greatly improved. Gaps in information and misunderstandings can be avoided by working in cooperation with the patients, their relatives, and within the PAH team. (Less)
Please use this url to cite or link to this publication:
author
organization
publishing date
type
Contribution to journal
publication status
published
subject
in
Clinical medicine insights. Circulatory, respiratory and pulmonary medicine
volume
8
pages
21 - 28
publisher
Libertas Academica
external identifiers
  • pmid:25374462
  • scopus:84908555797
ISSN
1179-5484
DOI
10.4137/CCRPM.S18586
language
English
LU publication?
yes
id
fe42c94e-b5d5-4d69-9ef3-3288f23c360f (old id 4820194)
alternative location
http://www.ncbi.nlm.nih.gov/pubmed/25374462?dopt=Abstract
date added to LUP
2014-12-01 19:25:58
date last changed
2017-06-04 03:50:35
@article{fe42c94e-b5d5-4d69-9ef3-3288f23c360f,
  abstract     = {Patients with a life-limiting diagnosis of pulmonary arterial hypertension (PAH) or chronic thromboembolic pulmonary hypertension (CTEPH) need disease-specific information, ability to cope, and functioning social networks. This cohort study investigated the experiences of PAH and CTEPH patients who received information about their diagnosis, treatment, and management, in addition to coping and social support. Sixty-eight adult patients (mean ± SD, age 67 ± 14; 66% women) were included. A total of 54% of the patients wanted more information. Patients received information mostly in areas concerning medical test procedures, the diagnosis, disease severity, possible disease causes, and how to manage their disease. Coping ability was significantly better in patients who were satisfied with the received information (P = 0.0045). The information given to PAH or CTEPH patients and their communication with healthcare professionals can be greatly improved. Gaps in information and misunderstandings can be avoided by working in cooperation with the patients, their relatives, and within the PAH team.},
  author       = {Ivarsson, Bodil and Ekmehag, Björn and Hesselstrand, Roger and Rådegran, Göran and Sjöberg, Trygve},
  issn         = {1179-5484},
  language     = {eng},
  pages        = {21--28},
  publisher    = {Libertas Academica},
  series       = {Clinical medicine insights. Circulatory, respiratory and pulmonary medicine},
  title        = {Perceptions of received information, social support, and coping in patients with pulmonary arterial hypertension or chronic thromboembolic pulmonary hypertension.},
  url          = {http://dx.doi.org/10.4137/CCRPM.S18586},
  volume       = {8},
  year         = {2014},
}