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Parents' Experiences of Two Different Approaches to Diabetes Care in Children Newly Diagnosed With Type 1 Diabetes.

Sparud-Lundin, Carina LU and Hallström, Inger LU (2015) In Qualitative Health Research
Abstract
Various care approaches are provided to support families with newly diagnosed children in their task of diabetes management. We conducted qualitative interviews with 36 parents of 23 children, newly diagnosed with type 1 diabetes. The parents were recruited from participants in a Randomized Controlled Trial (RCT) evaluating hospital-based care (HBC) and hospital-based home care (HBHC), to explore their experiences of two different approaches to diabetes care. The HBC was considered as being safe but not family- or diabetes-oriented. The HBHC was described as a relaxed environment, providing individualized accessibility and possibilities for situational learning and was considered as more flexible, promoting normality and involvement. The... (More)
Various care approaches are provided to support families with newly diagnosed children in their task of diabetes management. We conducted qualitative interviews with 36 parents of 23 children, newly diagnosed with type 1 diabetes. The parents were recruited from participants in a Randomized Controlled Trial (RCT) evaluating hospital-based care (HBC) and hospital-based home care (HBHC), to explore their experiences of two different approaches to diabetes care. The HBC was considered as being safe but not family- or diabetes-oriented. The HBHC was described as a relaxed environment, providing individualized accessibility and possibilities for situational learning and was considered as more flexible, promoting normality and involvement. The transition to home was followed by a gradual discharge, which included contradictory feelings, ambivalence, and hesitation and also being prepared and ready for facing daily life. The core category depicts differences regarding the degree of family participation, from passive to more active participants in initial diabetes management. (Less)
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publication status
published
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in
Qualitative Health Research
publisher
SAGE Publications
external identifiers
  • pmid:25762706
  • scopus:84977117362
  • pmid:25762706
  • wos:000380066100003
ISSN
1049-7323
DOI
10.1177/1049732315575317
project
LUC3 - Lund University Child Centered Care
language
English
LU publication?
yes
additional info
The information about affiliations in this record was updated in December 2015. The record was previously connected to the following departments: Child, Family and Reproductive Health (013220003), The Vårdal Institute (016540000)
id
eb16b78f-fdcb-4218-a488-fda02a7084c8 (old id 5264649)
alternative location
http://www.ncbi.nlm.nih.gov/pubmed/25762706?dopt=Abstract
date added to LUP
2016-04-04 09:31:05
date last changed
2022-01-29 18:16:20
@article{eb16b78f-fdcb-4218-a488-fda02a7084c8,
  abstract     = {{Various care approaches are provided to support families with newly diagnosed children in their task of diabetes management. We conducted qualitative interviews with 36 parents of 23 children, newly diagnosed with type 1 diabetes. The parents were recruited from participants in a Randomized Controlled Trial (RCT) evaluating hospital-based care (HBC) and hospital-based home care (HBHC), to explore their experiences of two different approaches to diabetes care. The HBC was considered as being safe but not family- or diabetes-oriented. The HBHC was described as a relaxed environment, providing individualized accessibility and possibilities for situational learning and was considered as more flexible, promoting normality and involvement. The transition to home was followed by a gradual discharge, which included contradictory feelings, ambivalence, and hesitation and also being prepared and ready for facing daily life. The core category depicts differences regarding the degree of family participation, from passive to more active participants in initial diabetes management.}},
  author       = {{Sparud-Lundin, Carina and Hallström, Inger}},
  issn         = {{1049-7323}},
  language     = {{eng}},
  month        = {{03}},
  publisher    = {{SAGE Publications}},
  series       = {{Qualitative Health Research}},
  title        = {{Parents' Experiences of Two Different Approaches to Diabetes Care in Children Newly Diagnosed With Type 1 Diabetes.}},
  url          = {{http://dx.doi.org/10.1177/1049732315575317}},
  doi          = {{10.1177/1049732315575317}},
  year         = {{2015}},
}