Skip to main content

Lund University Publications

LUND UNIVERSITY LIBRARIES

Health-related quality of life and scar satisfaction in a cohort of children operated on for sacrococcygeal teratoma

Hambraeus, Mette LU ; Hagander, Lars LU orcid ; Arnbjörnsson, Einar LU ; Börjesson, Anna LU and Stenström, Pernilla LU orcid (2020) In Health and Quality of Life Outcomes 18(1).
Abstract

Aim: The aims of this study were to evaluate health-related quality of life (HRQoL) in children with sacrococcygeal teratoma and to explore the effect of the scar on physical, emotional and behavioral aspects. Methods: A cohort of children operated on for sacrococcygeal teratoma between 2000 and 2013 at Lund University Hospital, Sweden, and their parents were interviewed. HRQoL was evaluated with PedsQL, and scar satisfaction was estimated through Patient Observer Scar Assessment Score (POSA). Results: All eligible children (n = 17) were included (100% response rate). Median age was 7.3 years (range 3.5-16.0). Mean total PedsQL score was 92.3 (range 72.0 to 99.0). Patients with comorbidity scored lower (87.5) than those without (95.0)... (More)

Aim: The aims of this study were to evaluate health-related quality of life (HRQoL) in children with sacrococcygeal teratoma and to explore the effect of the scar on physical, emotional and behavioral aspects. Methods: A cohort of children operated on for sacrococcygeal teratoma between 2000 and 2013 at Lund University Hospital, Sweden, and their parents were interviewed. HRQoL was evaluated with PedsQL, and scar satisfaction was estimated through Patient Observer Scar Assessment Score (POSA). Results: All eligible children (n = 17) were included (100% response rate). Median age was 7.3 years (range 3.5-16.0). Mean total PedsQL score was 92.3 (range 72.0 to 99.0). Patients with comorbidity scored lower (87.5) than those without (95.0) (p < 0.05). Pain during sitting down was reported by two (20%) patients, and itching was reported by another two patients (20%) aged > 8 years. No children reported that they avoided situations due to the scar, and most (80% of children and 90% of parents) reported absent or only mild negative emotions when considering the scar. Conclusion: Children with sacrococcygeal teratoma had a good overall HRQoL, but comorbidity reduced the outcome. A few children reported scar-related impact on physical, behavioral and emotional aspects.

(Less)
Please use this url to cite or link to this publication:
author
; ; ; and
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
Children, Health-related quality of life, Sacrococcygeal teratoma, Scar
in
Health and Quality of Life Outcomes
volume
18
issue
1
article number
102
publisher
BioMed Central (BMC)
external identifiers
  • scopus:85083298169
  • pmid:32303229
ISSN
1477-7525
DOI
10.1186/s12955-020-01350-y
language
English
LU publication?
yes
id
534afd12-88b0-4821-9138-e97852a55271
date added to LUP
2020-04-30 08:18:19
date last changed
2024-04-03 04:30:05
@article{534afd12-88b0-4821-9138-e97852a55271,
  abstract     = {{<p>Aim: The aims of this study were to evaluate health-related quality of life (HRQoL) in children with sacrococcygeal teratoma and to explore the effect of the scar on physical, emotional and behavioral aspects. Methods: A cohort of children operated on for sacrococcygeal teratoma between 2000 and 2013 at Lund University Hospital, Sweden, and their parents were interviewed. HRQoL was evaluated with PedsQL, and scar satisfaction was estimated through Patient Observer Scar Assessment Score (POSA). Results: All eligible children (n = 17) were included (100% response rate). Median age was 7.3 years (range 3.5-16.0). Mean total PedsQL score was 92.3 (range 72.0 to 99.0). Patients with comorbidity scored lower (87.5) than those without (95.0) (p &lt; 0.05). Pain during sitting down was reported by two (20%) patients, and itching was reported by another two patients (20%) aged &gt; 8 years. No children reported that they avoided situations due to the scar, and most (80% of children and 90% of parents) reported absent or only mild negative emotions when considering the scar. Conclusion: Children with sacrococcygeal teratoma had a good overall HRQoL, but comorbidity reduced the outcome. A few children reported scar-related impact on physical, behavioral and emotional aspects.</p>}},
  author       = {{Hambraeus, Mette and Hagander, Lars and Arnbjörnsson, Einar and Börjesson, Anna and Stenström, Pernilla}},
  issn         = {{1477-7525}},
  keywords     = {{Children; Health-related quality of life; Sacrococcygeal teratoma; Scar}},
  language     = {{eng}},
  number       = {{1}},
  publisher    = {{BioMed Central (BMC)}},
  series       = {{Health and Quality of Life Outcomes}},
  title        = {{Health-related quality of life and scar satisfaction in a cohort of children operated on for sacrococcygeal teratoma}},
  url          = {{http://dx.doi.org/10.1186/s12955-020-01350-y}},
  doi          = {{10.1186/s12955-020-01350-y}},
  volume       = {{18}},
  year         = {{2020}},
}