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Översättning och testning av ett livskvalitetinstrument: : The PedsQL™ Family Impact Module

Tiberg, Irén LU and Kristensson Hallström, Inger LU (2009) In Nordic Journal of Nursing Research 29(1). p.38-42
Abstract
The whole family is affected when a child is ill. Families facing the same illness stressors respond in different ways and have different needs forhealthcare. However, assessing a family’s needs is difficult. Few instruments for assessment of families’ health related quality of life, when achild in the family has a chronic illness, exist. The purpose of this study was to translate The PedsQL™ Family Impact Module from English intoSwedish and to test the instrument in clinical practise. This process was done in four steps. Two forwards, independently translations were com-pared and outlined in a first version. This version was backwards translated and compared with the original version and outlined in a secondversion. Five parents tested... (More)
The whole family is affected when a child is ill. Families facing the same illness stressors respond in different ways and have different needs forhealthcare. However, assessing a family’s needs is difficult. Few instruments for assessment of families’ health related quality of life, when achild in the family has a chronic illness, exist. The purpose of this study was to translate The PedsQL™ Family Impact Module from English intoSwedish and to test the instrument in clinical practise. This process was done in four steps. Two forwards, independently translations were com-pared and outlined in a first version. This version was backwards translated and compared with the original version and outlined in a secondversion. Five parents tested through face to face interviews the translated instrument. The questionnaire was field-tested in 103 parents to chil-dren with diabetes (aged 4–19), consecutively sampled when their child visited a children hospital in Sweden for their regular diabetes check.Internal consistency reliability alpha coefficient for the Swedish version of The PedsQL™ Family Impact Module (36 items) exceeded all scalesthe minimum reliability standard of 0.70. The instrument is suggested to be useful in quality improvement work and may be a help to identifyfamilies with chronic illness in need of support. (Less)
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alternative title
TRANSLATION AND TESTING OF A QUALITY OF LIFE INSTRUMENT: : The PedsQL™ Family Impact Module
publishing date
type
Contribution to journal
publication status
published
subject
in
Nordic Journal of Nursing Research
volume
29
issue
1
pages
38 - 42
publisher
SAGE Publications
ISSN
2057-1585
language
Swedish
LU publication?
yes
id
596058c1-d7e5-40a2-882c-3a7850cfef7a
alternative location
https://journals.sagepub.com/doi/pdf/10.1177/010740830902900109
date added to LUP
2019-05-29 12:43:59
date last changed
2019-08-27 10:07:55
@article{596058c1-d7e5-40a2-882c-3a7850cfef7a,
  abstract     = {The whole family is affected when a child is ill. Families facing the same illness stressors respond in different ways and have different needs forhealthcare. However, assessing a family’s needs is difficult. Few instruments for assessment of families’ health related quality of life, when achild in the family has a chronic illness, exist. The purpose of this study was to translate The PedsQL™ Family Impact Module from English intoSwedish and to test the instrument in clinical practise. This process was done in four steps. Two forwards, independently translations were com-pared and outlined in a first version. This version was backwards translated and compared with the original version and outlined in a secondversion. Five parents tested through face to face interviews the translated instrument. The questionnaire was field-tested in 103 parents to chil-dren with diabetes (aged 4–19), consecutively sampled when their child visited a children hospital in Sweden for their regular diabetes check.Internal consistency reliability alpha coefficient for the Swedish version of The PedsQL™ Family Impact Module (36 items) exceeded all scalesthe minimum reliability standard of 0.70. The instrument is suggested to be useful in quality improvement work and may be a help to identifyfamilies with chronic illness in need of support.},
  author       = {Tiberg, Irén and Kristensson Hallström, Inger},
  issn         = {2057-1585},
  language     = {swe},
  number       = {1},
  pages        = {38--42},
  publisher    = {SAGE Publications},
  series       = {Nordic Journal of Nursing Research},
  title        = {Översättning och testning av ett livskvalitetinstrument: : The PedsQL™ Family Impact Module},
  url          = {https://journals.sagepub.com/doi/pdf/10.1177/010740830902900109},
  volume       = {29},
  year         = {2009},
}