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Mini-symposium: Powered mobility : Facilitating participation in children with Spinal Muscular Atrophy (SMA) type 1. Ready for the Race?

Palomo-Carrion, Rocio ; de Andrés Beltrán, Beatriz ; Nilsson, Lisbeth LU and Ródenas Martínez, Maribel (2023) 35th EACD Annual Meeting European Academy of Childhood Disability p.86-86
Abstract
OBJECTIVES
The symposium will provide the know-how about powered mobility use in children with Spinal Muscular Atrophy Type I. Define what are the barriers of their mobility and how powered mobility can facilitate participation and social interaction. Disseminate the importance of family involvement in early powered mobility through the use of adapted motorized devices supporting development of functional strategies that improve the child's access to their natural environment.
SUMMARY
Children diagnosed with spinal muscular atrophy (SMA) have motor disorders that affect their mobility, restricting activities of daily living and participation. Powered mobility when used within their natural environment, involving the family,... (More)
OBJECTIVES
The symposium will provide the know-how about powered mobility use in children with Spinal Muscular Atrophy Type I. Define what are the barriers of their mobility and how powered mobility can facilitate participation and social interaction. Disseminate the importance of family involvement in early powered mobility through the use of adapted motorized devices supporting development of functional strategies that improve the child's access to their natural environment.
SUMMARY
Children diagnosed with spinal muscular atrophy (SMA) have motor disorders that affect their mobility, restricting activities of daily living and participation. Powered mobility when used within their natural environment, involving the family, can encourage their motivation to be mobile and facilitate participation. Experiences of self-produced mobility gives opportunities for learning and interaction and facilitates autonomy. The child’s exploratory activity with an adapted powered device causes continuous changes of position in relation to the physical and social environment, giving new perspectives and opportunities for interaction and participation.
OUTLINE OF the Symposium
- Introduction 5’. Bea de Andrés..
- What are the barriers in the participation of SMA type I in the natural environment? What do the families think? 15’. Maribel Ródenas y Rocío Palomo.
- What can powered mobility offer in SMA type I? Ready for the race? 25’ Ródenas M, De Andrés B, Palomo R.
- Why is Driving to Learn a powerful developing experience? How to apply the two parts of the process-based Assessment of Learning Powered mobility use (ALP)? Lisbeth Nilsson 30’’
- Discussion. 15’ (Less)
Please use this url to cite or link to this publication:
author
; ; and
organization
publishing date
type
Contribution to conference
publication status
published
subject
pages
1 pages
conference name
35th EACD Annual Meeting European Academy of Childhood Disability
conference location
Ljubljana, Slovenia
conference dates
2023-05-24 - 2023-05-27
language
English
LU publication?
yes
id
7e83c0fd-61a5-4dfd-9faa-23d330622ed4
alternative location
https://eacd2023.org/images/EACD_2023_Book_of_abstracts.pdf
date added to LUP
2024-01-23 13:46:06
date last changed
2024-01-23 14:58:23
@misc{7e83c0fd-61a5-4dfd-9faa-23d330622ed4,
  abstract     = {{OBJECTIVES<br/>The symposium will provide the know-how about powered mobility use in children with Spinal Muscular Atrophy Type I. Define what are the barriers of their mobility and how powered mobility can facilitate participation and social interaction. Disseminate the importance of family involvement in early powered mobility through the use of adapted motorized devices supporting development of functional strategies that improve the child's access to their natural environment. <br/>SUMMARY<br/>Children diagnosed with spinal muscular atrophy (SMA) have motor disorders that affect their mobility, restricting activities of daily living and participation. Powered mobility when used within their natural environment, involving the family, can encourage their motivation to be mobile and facilitate participation. Experiences of self-produced mobility gives opportunities for learning and interaction and facilitates autonomy. The child’s exploratory activity with an adapted powered device causes continuous changes of position in relation to the physical and social environment, giving new perspectives and opportunities for interaction and participation.<br/>OUTLINE OF the Symposium<br/>- Introduction 5’. Bea de Andrés..<br/>- What are the barriers in the participation of SMA type I in the natural environment? What do the families think? 15’. Maribel Ródenas y Rocío Palomo.<br/>- What can powered mobility offer in SMA type I? Ready for the race? 25’ Ródenas M, De Andrés B, Palomo R.<br/>- Why is Driving to Learn a powerful developing experience? How to apply the two parts of the process-based Assessment of Learning Powered mobility use (ALP)? Lisbeth Nilsson 30’’<br/>- Discussion. 15’}},
  author       = {{Palomo-Carrion, Rocio and de Andrés Beltrán, Beatriz and Nilsson, Lisbeth and Ródenas Martínez, Maribel}},
  language     = {{eng}},
  month        = {{05}},
  pages        = {{86--86}},
  title        = {{Mini-symposium: Powered mobility : Facilitating participation in children with Spinal Muscular Atrophy (SMA) type 1. Ready for the Race?}},
  url          = {{https://eacd2023.org/images/EACD_2023_Book_of_abstracts.pdf}},
  year         = {{2023}},
}