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Translation and cultural adaptation of the Integrated Palliative care Outcome Scale including cognitive interviewing with patients and staff

Beck, Ingela LU ; Olsson Möller, Ulrika LU ; Malmström, Marlene LU ; Klarare, Anna; Samuelsson, Henrik; Lundh Hagelin, Carina; Rasmussen, Birgit LU and Fürst, Carl Johan LU (2017) In BMC Palliative Care 16(1).
Abstract

Background: To expand our clinical and scientific knowledge about holistic outcomes within palliative care, there is a need for agreed-upon patient-reported outcome measures. These patient-reported outcome measures then require translation and cultural adaptation, either from country-specific languages to English, or the other way around. The aim of this study was to translate and cross-culturally adapt the Integrated Palliative care Outcome Scale (IPOS) to the Swedish care context. Methods: Swedish versions of IPOS Patient and IPOS Staff were developed and culturally adapted using recommended guidelines including cognitive interviews with patients (n = 13) and staff (n = 15) from different care contexts including general and... (More)

Background: To expand our clinical and scientific knowledge about holistic outcomes within palliative care, there is a need for agreed-upon patient-reported outcome measures. These patient-reported outcome measures then require translation and cultural adaptation, either from country-specific languages to English, or the other way around. The aim of this study was to translate and cross-culturally adapt the Integrated Palliative care Outcome Scale (IPOS) to the Swedish care context. Methods: Swedish versions of IPOS Patient and IPOS Staff were developed and culturally adapted using recommended guidelines including cognitive interviews with patients (n = 13) and staff (n = 15) from different care contexts including general and specialised palliative care. Results: The comprehension and judgement difficulties identified in the pre-final patient and staff versions were successfully solved during the cognitive interviewing process. IPOS was well accepted by both patients and staff, none of the questions were experienced as inappropriate, and all questions were judged important. Conclusions: In this study, we translated and culturally adapted the patient and staff versions of IPOS, and demonstrated face and content validity and acceptability of the scale through cognitive interviewing with patients and staff within residential care facility, surgical and specialised palliative home care units. Cognitive interviewing in parallel with patients and staff in rounds, with tentative analysis in between, was a suitable method for identifying and solving challenges with comprehension and evaluation in the pre-final version of IPOS. The Swedish IPOS is now available for use in a variety of clinical care settings.

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author
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
Cognitive interviewing, IPOS, Outcome measurement, Palliative care, Patient-reported outcome measures, Validity
in
BMC Palliative Care
volume
16
issue
1
publisher
BioMed Central
external identifiers
  • scopus:85029297073
  • pmid:28893215
ISSN
1472-684X
DOI
10.1186/s12904-017-0232-x
language
English
LU publication?
yes
id
c16d2cc6-1f7b-4073-bbfa-d8dfc3256f65
date added to LUP
2017-10-09 10:08:01
date last changed
2018-01-07 12:21:18
@article{c16d2cc6-1f7b-4073-bbfa-d8dfc3256f65,
  abstract     = {<p>Background: To expand our clinical and scientific knowledge about holistic outcomes within palliative care, there is a need for agreed-upon patient-reported outcome measures. These patient-reported outcome measures then require translation and cultural adaptation, either from country-specific languages to English, or the other way around. The aim of this study was to translate and cross-culturally adapt the Integrated Palliative care Outcome Scale (IPOS) to the Swedish care context. Methods: Swedish versions of IPOS Patient and IPOS Staff were developed and culturally adapted using recommended guidelines including cognitive interviews with patients (n = 13) and staff (n = 15) from different care contexts including general and specialised palliative care. Results: The comprehension and judgement difficulties identified in the pre-final patient and staff versions were successfully solved during the cognitive interviewing process. IPOS was well accepted by both patients and staff, none of the questions were experienced as inappropriate, and all questions were judged important. Conclusions: In this study, we translated and culturally adapted the patient and staff versions of IPOS, and demonstrated face and content validity and acceptability of the scale through cognitive interviewing with patients and staff within residential care facility, surgical and specialised palliative home care units. Cognitive interviewing in parallel with patients and staff in rounds, with tentative analysis in between, was a suitable method for identifying and solving challenges with comprehension and evaluation in the pre-final version of IPOS. The Swedish IPOS is now available for use in a variety of clinical care settings.</p>},
  articleno    = {49},
  author       = {Beck, Ingela and Olsson Möller, Ulrika and Malmström, Marlene and Klarare, Anna and Samuelsson, Henrik and Lundh Hagelin, Carina and Rasmussen, Birgit and Fürst, Carl Johan},
  issn         = {1472-684X},
  keyword      = {Cognitive interviewing,IPOS,Outcome measurement,Palliative care,Patient-reported outcome measures,Validity},
  language     = {eng},
  month        = {09},
  number       = {1},
  publisher    = {BioMed Central},
  series       = {BMC Palliative Care},
  title        = {Translation and cultural adaptation of the Integrated Palliative care Outcome Scale including cognitive interviewing with patients and staff},
  url          = {http://dx.doi.org/10.1186/s12904-017-0232-x},
  volume       = {16},
  year         = {2017},
}