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Living an Everyday Life Through a Child's Cancer Trajectory: Families' Lived Experiences 7 Years After Diagnosis

Sundler, Annelie Johansson ; Hallström, Inger LU ; Hammarlund, Kina and Bjork, Maria (2013) In Journal of Pediatric Oncology Nursing 30(6). p.293-300
Abstract
The aim of this study was to illuminate the lived experiences of families where a child had survived 7 years from a diagnosis of childhood cancer. This article describes one part of an inductive and longitudinal research project that included 17 families. Four families whose child was diagnosed with cancer 7 years previously were interviewed using a hermeneutical phenomenological approach. The families lived experience was described in one essential theme, Living an everyday life through the child's cancer trajectory, further illuminated in 3 related themes: Leaving the disease behind yet feeling its presence, Being the same yet always different, and Feeling stronger yet vulnerable. The results suggest that family members feel vulnerable... (More)
The aim of this study was to illuminate the lived experiences of families where a child had survived 7 years from a diagnosis of childhood cancer. This article describes one part of an inductive and longitudinal research project that included 17 families. Four families whose child was diagnosed with cancer 7 years previously were interviewed using a hermeneutical phenomenological approach. The families lived experience was described in one essential theme, Living an everyday life through the child's cancer trajectory, further illuminated in 3 related themes: Leaving the disease behind yet feeling its presence, Being the same yet always different, and Feeling stronger yet vulnerable. The results suggest that family members feel vulnerable even if a long period of time has passed since completion of treatment. To varied degrees they still may need support. When moving forward in life, the family members are helped if they can reconcile their memories and experiences derived from the childhood cancer trajectory. (Less)
Please use this url to cite or link to this publication:
author
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
family, pediatric cancer, lived experience, nursing
in
Journal of Pediatric Oncology Nursing
volume
30
issue
6
pages
293 - 300
publisher
SAGE Publications Inc.
external identifiers
  • wos:000328879700001
  • scopus:84891100044
ISSN
1043-4542
DOI
10.1177/1043454213513837
project
Children with cancer
LUC3 - Lund University Child Centered Care
Hospital-based Home Care for children with long-term illness
language
English
LU publication?
yes
id
d2dd7c59-cd0b-4324-a403-2dd882ea6d8e (old id 4272084)
date added to LUP
2016-04-01 10:04:47
date last changed
2019-11-26 01:22:00
@article{d2dd7c59-cd0b-4324-a403-2dd882ea6d8e,
  abstract     = {The aim of this study was to illuminate the lived experiences of families where a child had survived 7 years from a diagnosis of childhood cancer. This article describes one part of an inductive and longitudinal research project that included 17 families. Four families whose child was diagnosed with cancer 7 years previously were interviewed using a hermeneutical phenomenological approach. The families lived experience was described in one essential theme, Living an everyday life through the child's cancer trajectory, further illuminated in 3 related themes: Leaving the disease behind yet feeling its presence, Being the same yet always different, and Feeling stronger yet vulnerable. The results suggest that family members feel vulnerable even if a long period of time has passed since completion of treatment. To varied degrees they still may need support. When moving forward in life, the family members are helped if they can reconcile their memories and experiences derived from the childhood cancer trajectory.},
  author       = {Sundler, Annelie Johansson and Hallström, Inger and Hammarlund, Kina and Bjork, Maria},
  issn         = {1043-4542},
  language     = {eng},
  number       = {6},
  pages        = {293--300},
  publisher    = {SAGE Publications Inc.},
  series       = {Journal of Pediatric Oncology Nursing},
  title        = {Living an Everyday Life Through a Child's Cancer Trajectory: Families' Lived Experiences 7 Years After Diagnosis},
  url          = {https://lup.lub.lu.se/search/ws/files/1543410/4611841.pdf},
  doi          = {10.1177/1043454213513837},
  volume       = {30},
  year         = {2013},
}