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Toward developing consensus on family-centred care : An international descriptive study and discussion

Al-Motlaq, Mohammad A. ; Carter, Bernie ; Neill, Sarah ; Hallstrom, Inger Kristensson LU ; Foster, Mandie ; Coyne, Imelda ; Arabiat, Diana ; Darbyshire, Philip ; Feeg, Veronica D. and Shields, Linda (2019) In Journal of Child Health Care 23(3). p.458-467
Abstract

Nurses around the world have described family-centred care (FCC) in various ways. With limited evidence regarding its implementation and with dissent among professionals regarding outcomes that are amorphously defined across age groups, systems and global settings, a group of children’s nursing experts from around the world collaborated to seek clarification of the terms, deconstruct the elements in the model and describe empirically a consensus of values toward operationally defining FCC. A modified Delphi method was used drawing on expert opinions of participants from eight countries to develop a contemporary and internationally agreed list of 27 statements (descriptors of FCC) that could form the foundation for a measure for future... (More)

Nurses around the world have described family-centred care (FCC) in various ways. With limited evidence regarding its implementation and with dissent among professionals regarding outcomes that are amorphously defined across age groups, systems and global settings, a group of children’s nursing experts from around the world collaborated to seek clarification of the terms, deconstruct the elements in the model and describe empirically a consensus of values toward operationally defining FCC. A modified Delphi method was used drawing on expert opinions of participants from eight countries to develop a contemporary and internationally agreed list of 27 statements (descriptors of FCC) that could form the foundation for a measure for future empirical psychometric study of FCC across settings and countries. Results indicated that even among FCC experts, understandings of FCC differ and that this may account for some of the confusion and conceptual disagreement. Recommendations were identified to underpin the development of a clearer vision of FCC.

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author
; ; ; ; ; ; ; ; and
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
Culture and cultural issues, Delphi technique, evidence-based practice, family-centred care
in
Journal of Child Health Care
volume
23
issue
3
pages
10 pages
publisher
SAGE Publications
external identifiers
  • scopus:85053371682
  • pmid:30149735
ISSN
1367-4935
DOI
10.1177/1367493518795341
project
LUC3 - Lund University Child Centered Care
Knowledge development and translation in implemented CCC
language
English
LU publication?
yes
id
da67f7d6-c42a-41a2-a2f4-54368f06ab3c
date added to LUP
2018-11-12 18:48:55
date last changed
2025-04-16 02:57:25
@article{da67f7d6-c42a-41a2-a2f4-54368f06ab3c,
  abstract     = {{<p>Nurses around the world have described family-centred care (FCC) in various ways. With limited evidence regarding its implementation and with dissent among professionals regarding outcomes that are amorphously defined across age groups, systems and global settings, a group of children’s nursing experts from around the world collaborated to seek clarification of the terms, deconstruct the elements in the model and describe empirically a consensus of values toward operationally defining FCC. A modified Delphi method was used drawing on expert opinions of participants from eight countries to develop a contemporary and internationally agreed list of 27 statements (descriptors of FCC) that could form the foundation for a measure for future empirical psychometric study of FCC across settings and countries. Results indicated that even among FCC experts, understandings of FCC differ and that this may account for some of the confusion and conceptual disagreement. Recommendations were identified to underpin the development of a clearer vision of FCC.</p>}},
  author       = {{Al-Motlaq, Mohammad A. and Carter, Bernie and Neill, Sarah and Hallstrom, Inger Kristensson and Foster, Mandie and Coyne, Imelda and Arabiat, Diana and Darbyshire, Philip and Feeg, Veronica D. and Shields, Linda}},
  issn         = {{1367-4935}},
  keywords     = {{Culture and cultural issues; Delphi technique; evidence-based practice; family-centred care}},
  language     = {{eng}},
  month        = {{09}},
  number       = {{3}},
  pages        = {{458--467}},
  publisher    = {{SAGE Publications}},
  series       = {{Journal of Child Health Care}},
  title        = {{Toward developing consensus on family-centred care : An international descriptive study and discussion}},
  url          = {{http://dx.doi.org/10.1177/1367493518795341}},
  doi          = {{10.1177/1367493518795341}},
  volume       = {{23}},
  year         = {{2019}},
}