A systematic review of current national hospital-based stroke registries monitoring access to evidence-based care and patient outcomes
(2025) In European Stroke Journal- Abstract
Background: National stroke clinical quality registries/audits support improvements in stroke care. In a 2016 systematic review, 28 registries were identified. Since 2016 there have been important advances in stroke care, including the development of thrombectomy services. Therefore, we sought to understand whether registries have evolved with these advances in care. The aim of this systematic review was to identify current, hospital-based national stroke registries/audits and describe variables (processes, outcome), methods, funding and governance). Methods: We searched four databases (21st May 2015 to 1st February 2024), grey literature and stroke organisations’ websites. Initially two reviewers screened each citation; when agreement... (More)
Background: National stroke clinical quality registries/audits support improvements in stroke care. In a 2016 systematic review, 28 registries were identified. Since 2016 there have been important advances in stroke care, including the development of thrombectomy services. Therefore, we sought to understand whether registries have evolved with these advances in care. The aim of this systematic review was to identify current, hospital-based national stroke registries/audits and describe variables (processes, outcome), methods, funding and governance). Methods: We searched four databases (21st May 2015 to 1st February 2024), grey literature and stroke organisations’ websites. Initially two reviewers screened each citation; when agreement was satisfactory, one of four reviewers screened each citation. The same process was applied to full texts. If there were no new publications from registries identified in the original 2016 review, we contacted the registry leads. We extracted data using predefined categories on country (including income level), clinical/process variables, methods, funding and governance. Results: We found 37 registries from 31 countries (28 high income, four upper-middle income, five lower-middle income) of which 16 had been identified in 2016 and 21 were new. Twenty-two of the same variables were collected by >50% of registries/audits (mostly acute care, including thrombectomy, and secondary prevention), compared with only four variables in 2016. Descriptions of funding, management, methods of consent and data privacy, follow-up, feedback to hospitals, linkage to other datasets and alignment of variables with guidelines were variably reported. Reasons for apparent termination of some registries was unclear. Conclusions: The total number of stroke registries has increased since 2016, and the number of variables collected has increased, reflecting advances in stroke care. However, some registries appeared to have ceased; the reasons are unclear.
(Less)
- author
- organization
- publishing date
- 2025
- type
- Contribution to journal
- publication status
- epub
- subject
- keywords
- audit, quality, registry, Stroke
- in
- European Stroke Journal
- publisher
- SAGE Publications
- external identifiers
-
- pmid:39835448
- scopus:85215388571
- ISSN
- 2396-9873
- DOI
- 10.1177/23969873241311821
- language
- English
- LU publication?
- yes
- additional info
- Publisher Copyright: © European Stroke Organisation 2025.
- id
- e53c508f-21bc-4c05-87f4-987c227b3b94
- date added to LUP
- 2025-05-06 11:15:11
- date last changed
- 2025-05-09 13:52:10
@article{e53c508f-21bc-4c05-87f4-987c227b3b94,
abstract = {{<p>Background: National stroke clinical quality registries/audits support improvements in stroke care. In a 2016 systematic review, 28 registries were identified. Since 2016 there have been important advances in stroke care, including the development of thrombectomy services. Therefore, we sought to understand whether registries have evolved with these advances in care. The aim of this systematic review was to identify current, hospital-based national stroke registries/audits and describe variables (processes, outcome), methods, funding and governance). Methods: We searched four databases (21st May 2015 to 1st February 2024), grey literature and stroke organisations’ websites. Initially two reviewers screened each citation; when agreement was satisfactory, one of four reviewers screened each citation. The same process was applied to full texts. If there were no new publications from registries identified in the original 2016 review, we contacted the registry leads. We extracted data using predefined categories on country (including income level), clinical/process variables, methods, funding and governance. Results: We found 37 registries from 31 countries (28 high income, four upper-middle income, five lower-middle income) of which 16 had been identified in 2016 and 21 were new. Twenty-two of the same variables were collected by >50% of registries/audits (mostly acute care, including thrombectomy, and secondary prevention), compared with only four variables in 2016. Descriptions of funding, management, methods of consent and data privacy, follow-up, feedback to hospitals, linkage to other datasets and alignment of variables with guidelines were variably reported. Reasons for apparent termination of some registries was unclear. Conclusions: The total number of stroke registries has increased since 2016, and the number of variables collected has increased, reflecting advances in stroke care. However, some registries appeared to have ceased; the reasons are unclear.</p>}},
author = {{Leigh, Chloe and Gill, Jodie and Razak, Zainab and Shreyan, Shirsho and Cadilhac, Dominique A. and Kim, Joosup and Lannin, Natasha A. and Dennis, Martin and Kapral, Moira and Pandian, Jeyaraj and Hardianto, Yudi and Lin, Beilei and Meretoja, Atte and Aziz, Noor Azah Abd and Schwamm, Lee and Norrving, Bo and Thapa, Lekhjung and Dozier, Marshall and Kelavkar, Shyam and Mead, Gillian}},
issn = {{2396-9873}},
keywords = {{audit; quality; registry; Stroke}},
language = {{eng}},
publisher = {{SAGE Publications}},
series = {{European Stroke Journal}},
title = {{A systematic review of current national hospital-based stroke registries monitoring access to evidence-based care and patient outcomes}},
url = {{http://dx.doi.org/10.1177/23969873241311821}},
doi = {{10.1177/23969873241311821}},
year = {{2025}},
}