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eHealth in Pediatric Surgery : Impact on Postsurgical Care After Reconstructive Surgery for Anorectal Malformations and Hirschsprung's Disease

Wester Fleur, Matilda LU orcid ; Johnsson, Björn A. LU orcid ; Castor, Charlotte LU and Stenström, Pernilla LU orcid (2025) In Journal of Pediatric Surgery 60(5).
Abstract

Background: To support care after discharge following surgery for anorectal malformations (ARM) and Hirschsprung's disease (HD), an eHealth device was invented, offering families bilateral communication through chat, photo, questionaries and video. Aim: To explore the impact of eHealth on postoperative patterns of expert consultation, complications and treatment after discharge following surgery for ARM and HD, respectively, compared to conventional care. Method: Interventional prospective case control study observing postoperative care 30 days after discharge after ARM and HD-reconstructions July 2018–July 2023, comparing outcomes between families using the eHealth device versus conventional care. Results: Consecutively included were... (More)

Background: To support care after discharge following surgery for anorectal malformations (ARM) and Hirschsprung's disease (HD), an eHealth device was invented, offering families bilateral communication through chat, photo, questionaries and video. Aim: To explore the impact of eHealth on postoperative patterns of expert consultation, complications and treatment after discharge following surgery for ARM and HD, respectively, compared to conventional care. Method: Interventional prospective case control study observing postoperative care 30 days after discharge after ARM and HD-reconstructions July 2018–July 2023, comparing outcomes between families using the eHealth device versus conventional care. Results: Consecutively included were 95/141 families (eHealth: ARM n = 48, HD n = 25; respective conventional care: ARM n = 16, HD n = 6). Days to first contact after discharge were fewer for eHealth users, both for ARM 2 vs. 5.5 (p = 0.000) and HD 1 vs 7 (p = 0.000). Days with consultations were more numerous using eHealth: ARM 9 vs 4 (p = 0.000) and HD 12 vs 3.5 (p = 0.001) specifically nurse counseling; ARM 6 versus 1 (p = 0.000) and HD 11 vs 2.5 (p = 0.001). In ARM patients the complication frequency was 23 % (eHealth) versus 50 % (conventional), and the complication severity was lower: Clavien-Madadi 0 (0–4) versus 1 (0–3) (p = 0.040). Treatment adjustments were more frequent for HD patients using eHealth (3 vs. 2 (p = 0.041)). Conclusion: Use of eHealth after ARM respective HD reconstructions implies earlier and more frequent postoperative counseling, especially with nurses. When using eHealth complications were less severe in ARM-patients and treatment adjustments more frequent in the HD patients, compared to those under conventional care.

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@article{f3e7591a-e311-48ba-a067-23860857cbde,
  abstract     = {{<p>Background: To support care after discharge following surgery for anorectal malformations (ARM) and Hirschsprung's disease (HD), an eHealth device was invented, offering families bilateral communication through chat, photo, questionaries and video. Aim: To explore the impact of eHealth on postoperative patterns of expert consultation, complications and treatment after discharge following surgery for ARM and HD, respectively, compared to conventional care. Method: Interventional prospective case control study observing postoperative care 30 days after discharge after ARM and HD-reconstructions July 2018–July 2023, comparing outcomes between families using the eHealth device versus conventional care. Results: Consecutively included were 95/141 families (eHealth: ARM n = 48, HD n = 25; respective conventional care: ARM n = 16, HD n = 6). Days to first contact after discharge were fewer for eHealth users, both for ARM 2 vs. 5.5 (p = 0.000) and HD 1 vs 7 (p = 0.000). Days with consultations were more numerous using eHealth: ARM 9 vs 4 (p = 0.000) and HD 12 vs 3.5 (p = 0.001) specifically nurse counseling; ARM 6 versus 1 (p = 0.000) and HD 11 vs 2.5 (p = 0.001). In ARM patients the complication frequency was 23 % (eHealth) versus 50 % (conventional), and the complication severity was lower: Clavien-Madadi 0 (0–4) versus 1 (0–3) (p = 0.040). Treatment adjustments were more frequent for HD patients using eHealth (3 vs. 2 (p = 0.041)). Conclusion: Use of eHealth after ARM respective HD reconstructions implies earlier and more frequent postoperative counseling, especially with nurses. When using eHealth complications were less severe in ARM-patients and treatment adjustments more frequent in the HD patients, compared to those under conventional care.</p>}},
  author       = {{Wester Fleur, Matilda and Johnsson, Björn A. and Castor, Charlotte and Stenström, Pernilla}},
  issn         = {{0022-3468}},
  keywords     = {{Anorectal malformations; Communication; eHealth; Hirschsprung's disease; Pediatric surgery; Postoperative care}},
  language     = {{eng}},
  number       = {{5}},
  publisher    = {{Elsevier}},
  series       = {{Journal of Pediatric Surgery}},
  title        = {{eHealth in Pediatric Surgery : Impact on Postsurgical Care After Reconstructive Surgery for Anorectal Malformations and Hirschsprung's Disease}},
  url          = {{http://dx.doi.org/10.1016/j.jpedsurg.2025.162251}},
  doi          = {{10.1016/j.jpedsurg.2025.162251}},
  volume       = {{60}},
  year         = {{2025}},
}