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Patients’ perspective in the context of proton beam therapy : summary of a Nordic workshop

Ohlsson-Nevo, Emma ; Furberg, Maria ; Giørtz, Mette ; Johansson, Birgitta ; Kristensen, Ingrid LU ; Kunni, Kristin ; Langegård, Ulrica ; Lysemose Poulsen, Rikke ; Striem, Jörgen and Tømmerås, Veronika , et al. (2020) In Acta Oncologica 59(10). p.1139-1144
Abstract

Introduction: On 15–16 November 2019, the Skandion Clinic in Sweden hosted the first Nordic workshop on ‘Patients’ perspective in proton beam therapy’. The workshop was conducted to describe and compare the patient care in PBT clinics in the Nordic countries and to initiate a collaboration, with the target to ensure patient participation and reduce the risk of inequity of access by lowering the barriers for accepting PBT in a distant clinic. The overarching aim of this workshop was to describe and compare the use of patients’ perspectives in the Nordic PBT clinics. Material and Methods: Twelve participants attended the workshop, representing Denmark, Norway and Sweden. The participants were registered nurses working in patient care,... (More)

Introduction: On 15–16 November 2019, the Skandion Clinic in Sweden hosted the first Nordic workshop on ‘Patients’ perspective in proton beam therapy’. The workshop was conducted to describe and compare the patient care in PBT clinics in the Nordic countries and to initiate a collaboration, with the target to ensure patient participation and reduce the risk of inequity of access by lowering the barriers for accepting PBT in a distant clinic. The overarching aim of this workshop was to describe and compare the use of patients’ perspectives in the Nordic PBT clinics. Material and Methods: Twelve participants attended the workshop, representing Denmark, Norway and Sweden. The participants were registered nurses working in patient care, researchers, physicist and leaders of the Skandion Clinic. Results: The consensus of the workshop was that systematic use of patient experiences on individual and group level is essential for developing clinical practice and understanding the overall effects of PBT. A difference in how the Nordic countries use patient experiences in clinical practise was found. The importance of lowering the barriers for participation in national proton trials and proton treatment were emphasized, however, there is a lack of knowledge about individual and organizational barriers to accepting PBT, and further research is therefore needed. Conclusion: Collaboration between the Nordic countries regarding patients’ perspectives in the context of PBT is of importance to compare national differences as well as to find similarities, but most importantly to learn from each other and to improve patient care. Nordic collaboration with focus on systematic collection of patient-reported outcomes in the context of PBT is unique. Collaboration in research offers the possibility to increase the inclusion of patients’ perspectives in study protocols.

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publishing date
type
Contribution to journal
publication status
published
subject
in
Acta Oncologica
volume
59
issue
10
pages
6 pages
publisher
Taylor & Francis
external identifiers
  • scopus:85089575823
  • pmid:32536238
ISSN
0284-186X
DOI
10.1080/0284186X.2020.1762927
language
English
LU publication?
yes
id
fe70205e-b155-4950-9203-dcd1a72eb0c4
date added to LUP
2020-08-28 08:54:11
date last changed
2021-01-12 01:44:34
@article{fe70205e-b155-4950-9203-dcd1a72eb0c4,
  abstract     = {<p>Introduction: On 15–16 November 2019, the Skandion Clinic in Sweden hosted the first Nordic workshop on ‘Patients’ perspective in proton beam therapy’. The workshop was conducted to describe and compare the patient care in PBT clinics in the Nordic countries and to initiate a collaboration, with the target to ensure patient participation and reduce the risk of inequity of access by lowering the barriers for accepting PBT in a distant clinic. The overarching aim of this workshop was to describe and compare the use of patients’ perspectives in the Nordic PBT clinics. Material and Methods: Twelve participants attended the workshop, representing Denmark, Norway and Sweden. The participants were registered nurses working in patient care, researchers, physicist and leaders of the Skandion Clinic. Results: The consensus of the workshop was that systematic use of patient experiences on individual and group level is essential for developing clinical practice and understanding the overall effects of PBT. A difference in how the Nordic countries use patient experiences in clinical practise was found. The importance of lowering the barriers for participation in national proton trials and proton treatment were emphasized, however, there is a lack of knowledge about individual and organizational barriers to accepting PBT, and further research is therefore needed. Conclusion: Collaboration between the Nordic countries regarding patients’ perspectives in the context of PBT is of importance to compare national differences as well as to find similarities, but most importantly to learn from each other and to improve patient care. Nordic collaboration with focus on systematic collection of patient-reported outcomes in the context of PBT is unique. Collaboration in research offers the possibility to increase the inclusion of patients’ perspectives in study protocols.</p>},
  author       = {Ohlsson-Nevo, Emma and Furberg, Maria and Giørtz, Mette and Johansson, Birgitta and Kristensen, Ingrid and Kunni, Kristin and Langegård, Ulrica and Lysemose Poulsen, Rikke and Striem, Jörgen and Tømmerås, Veronika and Wilhøft Kristensen, Anne and Winther, Dorte and Sjövall, Katarina},
  issn         = {0284-186X},
  language     = {eng},
  month        = {06},
  number       = {10},
  pages        = {1139--1144},
  publisher    = {Taylor & Francis},
  series       = {Acta Oncologica},
  title        = {Patients’ perspective in the context of proton beam therapy : summary of a Nordic workshop},
  url          = {http://dx.doi.org/10.1080/0284186X.2020.1762927},
  doi          = {10.1080/0284186X.2020.1762927},
  volume       = {59},
  year         = {2020},
}