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von Willebrand's disease: a report from a meeting in the Åland islands.

Berntorp, Erik LU ; Peake, I ; Budde, U ; Laffan, M ; Montgomery, R ; Windyga, J ; Goodeve, A ; Petrini, A B ; von Depka, M and Miesbach, W , et al. (2012) In Haemophilia 18 Suppl 6. p.1-13
Abstract
von Willebrand's disease (VWD) is probably the most common bleeding disorder, with some studies indicating that up to 1% of the population may have the condition. Over recent years interest in VWD has fallen compared to that of haemophilia, partly the result of focus on blood-borne diseases such as HIV and hepatitis. Now the time has come to revisit VWD, and in view of this some 60 international physicians with clinical and scientific interest in VWD met over 4 days in 2010 in the Åland islands to discuss state-of-the-art issues in the disease. The Åland islands are where Erik von Willebrand had first observed a bleeding disorder in a number of members of a family from Föglö, and 2010 was also the 140th anniversary of his birth. This... (More)
von Willebrand's disease (VWD) is probably the most common bleeding disorder, with some studies indicating that up to 1% of the population may have the condition. Over recent years interest in VWD has fallen compared to that of haemophilia, partly the result of focus on blood-borne diseases such as HIV and hepatitis. Now the time has come to revisit VWD, and in view of this some 60 international physicians with clinical and scientific interest in VWD met over 4 days in 2010 in the Åland islands to discuss state-of-the-art issues in the disease. The Åland islands are where Erik von Willebrand had first observed a bleeding disorder in a number of members of a family from Föglö, and 2010 was also the 140th anniversary of his birth. This report summarizes the main papers presented at the symposium; topics ranged from genetics and biochemistry through to classification of VWD, pharmacokinetics and laboratory assays used in the diagnosis of the disease, inhibitors, treatment guidelines in different age groups including the elderly who often have comorbid conditions that present challenges, and prophylaxis. Other topics included managing surgeries in patients with VWD and the role of FVIII in VWF replacement, a controversial subject. (Less)
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organization
publishing date
type
Contribution to journal
publication status
published
subject
in
Haemophilia
volume
18 Suppl 6
pages
1 - 13
publisher
Wiley-Blackwell
external identifiers
  • wos:000307901000001
  • pmid:22906074
  • scopus:84865387027
  • pmid:22906074
ISSN
1351-8216
DOI
10.1111/j.1365-2516.2012.02925.x
language
English
LU publication?
yes
id
485a2984-cc7e-4d73-a98f-679336feb3f6 (old id 3047178)
alternative location
http://www.ncbi.nlm.nih.gov/pubmed/22906074?dopt=Abstract
date added to LUP
2016-04-04 08:56:21
date last changed
2022-07-03 03:28:54
@article{485a2984-cc7e-4d73-a98f-679336feb3f6,
  abstract     = {{von Willebrand's disease (VWD) is probably the most common bleeding disorder, with some studies indicating that up to 1% of the population may have the condition. Over recent years interest in VWD has fallen compared to that of haemophilia, partly the result of focus on blood-borne diseases such as HIV and hepatitis. Now the time has come to revisit VWD, and in view of this some 60 international physicians with clinical and scientific interest in VWD met over 4 days in 2010 in the Åland islands to discuss state-of-the-art issues in the disease. The Åland islands are where Erik von Willebrand had first observed a bleeding disorder in a number of members of a family from Föglö, and 2010 was also the 140th anniversary of his birth. This report summarizes the main papers presented at the symposium; topics ranged from genetics and biochemistry through to classification of VWD, pharmacokinetics and laboratory assays used in the diagnosis of the disease, inhibitors, treatment guidelines in different age groups including the elderly who often have comorbid conditions that present challenges, and prophylaxis. Other topics included managing surgeries in patients with VWD and the role of FVIII in VWF replacement, a controversial subject.}},
  author       = {{Berntorp, Erik and Peake, I and Budde, U and Laffan, M and Montgomery, R and Windyga, J and Goodeve, A and Petrini, A B and von Depka, M and Miesbach, W and Lillicrap, D and Federici, A B and Lassila, R and White, G}},
  issn         = {{1351-8216}},
  language     = {{eng}},
  pages        = {{1--13}},
  publisher    = {{Wiley-Blackwell}},
  series       = {{Haemophilia}},
  title        = {{von Willebrand's disease: a report from a meeting in the Åland islands.}},
  url          = {{http://dx.doi.org/10.1111/j.1365-2516.2012.02925.x}},
  doi          = {{10.1111/j.1365-2516.2012.02925.x}},
  volume       = {{18 Suppl 6}},
  year         = {{2012}},
}