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Development of a disease-specific quality of life questionnaire for children & adolescents with idiopathic thrombocytopenic purpura (ITP-QoL)

von Mackensen, S. ; Nilsson, Cecilia LU ; Jankovic, M. ; Mirra, N. ; D'Angelo, E. ; Borkhardt, A. and Ljung, Rolf LU orcid (2006) In Pediatric Blood & Cancer 47(Suppl.5). p.688-691
Abstract
Quality of life (QoL) assessment in children with coagulation disorders is a relatively unstudied area. While hemophilia-specific questionnaires (such as Haemo-QoL) are available, no instrument for children with idiopathic thrombocytopenic purpura (ITP) has been validated yet. A disease-specific questionnaire for children with ITP was therefore developed (ITP-QoL) in three phases: (a) a preparatory phase; (b) a developmental phase; (c) a pilot testing phase. Since dimensions of Haemo-QoL were considered important for children with ITP, items were adapted, reformulated and additional dimensions were included. Two age-group versions were designed for children (aged 3-7, 8-18 years) and parents in Italian, German, and Swedish languages and... (More)
Quality of life (QoL) assessment in children with coagulation disorders is a relatively unstudied area. While hemophilia-specific questionnaires (such as Haemo-QoL) are available, no instrument for children with idiopathic thrombocytopenic purpura (ITP) has been validated yet. A disease-specific questionnaire for children with ITP was therefore developed (ITP-QoL) in three phases: (a) a preparatory phase; (b) a developmental phase; (c) a pilot testing phase. Since dimensions of Haemo-QoL were considered important for children with ITP, items were adapted, reformulated and additional dimensions were included. Two age-group versions were designed for children (aged 3-7, 8-18 years) and parents in Italian, German, and Swedish languages and were pilot tested. Pediatr Blood Cancer 2006;47:688-691. (c) 2006 Wiley-Liss, Inc. (Less)
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author
; ; ; ; ; and
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
children, ITP, quality of life
in
Pediatric Blood & Cancer
volume
47
issue
Suppl.5
pages
688 - 691
publisher
John Wiley & Sons Inc.
external identifiers
  • wos:000240405600015
  • scopus:33748504143
  • pmid:16933256
ISSN
1545-5017
DOI
10.1002/pbc.20977
language
English
LU publication?
yes
id
6ddc30cd-232d-4a9a-945d-f3106e010149 (old id 393983)
date added to LUP
2016-04-01 12:37:53
date last changed
2022-01-27 07:44:53
@article{6ddc30cd-232d-4a9a-945d-f3106e010149,
  abstract     = {{Quality of life (QoL) assessment in children with coagulation disorders is a relatively unstudied area. While hemophilia-specific questionnaires (such as Haemo-QoL) are available, no instrument for children with idiopathic thrombocytopenic purpura (ITP) has been validated yet. A disease-specific questionnaire for children with ITP was therefore developed (ITP-QoL) in three phases: (a) a preparatory phase; (b) a developmental phase; (c) a pilot testing phase. Since dimensions of Haemo-QoL were considered important for children with ITP, items were adapted, reformulated and additional dimensions were included. Two age-group versions were designed for children (aged 3-7, 8-18 years) and parents in Italian, German, and Swedish languages and were pilot tested. Pediatr Blood Cancer 2006;47:688-691. (c) 2006 Wiley-Liss, Inc.}},
  author       = {{von Mackensen, S. and Nilsson, Cecilia and Jankovic, M. and Mirra, N. and D'Angelo, E. and Borkhardt, A. and Ljung, Rolf}},
  issn         = {{1545-5017}},
  keywords     = {{children; ITP; quality of life}},
  language     = {{eng}},
  number       = {{Suppl.5}},
  pages        = {{688--691}},
  publisher    = {{John Wiley & Sons Inc.}},
  series       = {{Pediatric Blood & Cancer}},
  title        = {{Development of a disease-specific quality of life questionnaire for children & adolescents with idiopathic thrombocytopenic purpura (ITP-QoL)}},
  url          = {{http://dx.doi.org/10.1002/pbc.20977}},
  doi          = {{10.1002/pbc.20977}},
  volume       = {{47}},
  year         = {{2006}},
}