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The Malmo-Klaipeda WFH twinning programme: a comparative description of the haemophilia cohorts

Berntorp, Erik LU ; Astermark, Jan LU ; Jurgutis, R; Lethagen, Stefan LU and Petersson, C (1998) In Haemophilia 4(2). p.79-82
Abstract
In 1994, the Malmo-Klaipeda twinning programme was approved by the World Federation of Hemophilia. One of the first steps in the collaboration has been to set up a registry of the haemophilia patients in the Klaipeda area. In order to collect important clinical data the patients have been examined jointly by experts on haemophilia from the two centres. Seventeen out of 25 patients with severe haemophilia known at the Klaipeda centre were examined and compared to a matched cohort of patients from the Malmo centre. The main differences between the cohorts were that home treatment was not available to the Klaipeda patients, they received less treatment in general, had higher joint scores and more frequent bleeds. The pattern of transmission... (More)
In 1994, the Malmo-Klaipeda twinning programme was approved by the World Federation of Hemophilia. One of the first steps in the collaboration has been to set up a registry of the haemophilia patients in the Klaipeda area. In order to collect important clinical data the patients have been examined jointly by experts on haemophilia from the two centres. Seventeen out of 25 patients with severe haemophilia known at the Klaipeda centre were examined and compared to a matched cohort of patients from the Malmo centre. The main differences between the cohorts were that home treatment was not available to the Klaipeda patients, they received less treatment in general, had higher joint scores and more frequent bleeds. The pattern of transmission of blood-borne virus was very similar, with a high prevalence of hepatitis C antibodies. We conclude that the twinning programme between Malmo and Klaipeda has resulted in several achievements, including training of staff and a necessary inventory of the patients. This should not only form a suitable platform for the future development of haemophilia care in Lithuania, but could also serve as an example for liaisons between other haemophilia centres. (Less)
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author
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
arthropathy, factor VIII, factor IX, Haemophilia, joint score, prophylaxis
in
Haemophilia
volume
4
issue
2
pages
79 - 82
publisher
Federation of European Neuroscience Societies and Blackwell Publishing Ltd
external identifiers
  • pmid:9873842
  • scopus:0032009760
ISSN
1351-8216
DOI
10.1046/j.1365-2516.1998.00169.x
language
English
LU publication?
yes
id
7f7bf9b6-4e4c-48c1-9c69-3bcb3e9fd45d (old id 1113640)
date added to LUP
2008-07-16 09:16:48
date last changed
2017-01-01 04:23:42
@article{7f7bf9b6-4e4c-48c1-9c69-3bcb3e9fd45d,
  abstract     = {In 1994, the Malmo-Klaipeda twinning programme was approved by the World Federation of Hemophilia. One of the first steps in the collaboration has been to set up a registry of the haemophilia patients in the Klaipeda area. In order to collect important clinical data the patients have been examined jointly by experts on haemophilia from the two centres. Seventeen out of 25 patients with severe haemophilia known at the Klaipeda centre were examined and compared to a matched cohort of patients from the Malmo centre. The main differences between the cohorts were that home treatment was not available to the Klaipeda patients, they received less treatment in general, had higher joint scores and more frequent bleeds. The pattern of transmission of blood-borne virus was very similar, with a high prevalence of hepatitis C antibodies. We conclude that the twinning programme between Malmo and Klaipeda has resulted in several achievements, including training of staff and a necessary inventory of the patients. This should not only form a suitable platform for the future development of haemophilia care in Lithuania, but could also serve as an example for liaisons between other haemophilia centres.},
  author       = {Berntorp, Erik and Astermark, Jan and Jurgutis, R and Lethagen, Stefan and Petersson, C},
  issn         = {1351-8216},
  keyword      = {arthropathy,factor VIII,factor IX,Haemophilia,joint score,prophylaxis},
  language     = {eng},
  number       = {2},
  pages        = {79--82},
  publisher    = {Federation of European Neuroscience Societies and Blackwell Publishing Ltd},
  series       = {Haemophilia},
  title        = {The Malmo-Klaipeda WFH twinning programme: a comparative description of the haemophilia cohorts},
  url          = {http://dx.doi.org/10.1046/j.1365-2516.1998.00169.x},
  volume       = {4},
  year         = {1998},
}