The Malmo-Klaipeda WFH twinning programme: a comparative description of the haemophilia cohorts
(1998) In Haemophilia 4(2). p.79-82- Abstract
- In 1994, the Malmo-Klaipeda twinning programme was approved by the World Federation of Hemophilia. One of the first steps in the collaboration has been to set up a registry of the haemophilia patients in the Klaipeda area. In order to collect important clinical data the patients have been examined jointly by experts on haemophilia from the two centres. Seventeen out of 25 patients with severe haemophilia known at the Klaipeda centre were examined and compared to a matched cohort of patients from the Malmo centre. The main differences between the cohorts were that home treatment was not available to the Klaipeda patients, they received less treatment in general, had higher joint scores and more frequent bleeds. The pattern of transmission... (More)
- In 1994, the Malmo-Klaipeda twinning programme was approved by the World Federation of Hemophilia. One of the first steps in the collaboration has been to set up a registry of the haemophilia patients in the Klaipeda area. In order to collect important clinical data the patients have been examined jointly by experts on haemophilia from the two centres. Seventeen out of 25 patients with severe haemophilia known at the Klaipeda centre were examined and compared to a matched cohort of patients from the Malmo centre. The main differences between the cohorts were that home treatment was not available to the Klaipeda patients, they received less treatment in general, had higher joint scores and more frequent bleeds. The pattern of transmission of blood-borne virus was very similar, with a high prevalence of hepatitis C antibodies. We conclude that the twinning programme between Malmo and Klaipeda has resulted in several achievements, including training of staff and a necessary inventory of the patients. This should not only form a suitable platform for the future development of haemophilia care in Lithuania, but could also serve as an example for liaisons between other haemophilia centres. (Less)
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https://lup.lub.lu.se/record/1113640
- author
- Berntorp, Erik LU ; Astermark, Jan LU ; Jurgutis, R ; Lethagen, Stefan LU and Petersson, C
- organization
- publishing date
- 1998
- type
- Contribution to journal
- publication status
- published
- subject
- keywords
- arthropathy, factor VIII, factor IX, Haemophilia, joint score, prophylaxis
- in
- Haemophilia
- volume
- 4
- issue
- 2
- pages
- 79 - 82
- publisher
- Wiley-Blackwell
- external identifiers
-
- pmid:9873842
- scopus:0032009760
- ISSN
- 1351-8216
- DOI
- 10.1046/j.1365-2516.1998.00169.x
- language
- English
- LU publication?
- yes
- additional info
- The information about affiliations in this record was updated in December 2015. The record was previously connected to the following departments: Emergency medicine/Medicine/Surgery (013240200), Clinical Coagulation Research Unit (013242510)
- id
- 7f7bf9b6-4e4c-48c1-9c69-3bcb3e9fd45d (old id 1113640)
- date added to LUP
- 2016-04-01 11:38:16
- date last changed
- 2022-01-26 07:59:56
@article{7f7bf9b6-4e4c-48c1-9c69-3bcb3e9fd45d,
abstract = {{In 1994, the Malmo-Klaipeda twinning programme was approved by the World Federation of Hemophilia. One of the first steps in the collaboration has been to set up a registry of the haemophilia patients in the Klaipeda area. In order to collect important clinical data the patients have been examined jointly by experts on haemophilia from the two centres. Seventeen out of 25 patients with severe haemophilia known at the Klaipeda centre were examined and compared to a matched cohort of patients from the Malmo centre. The main differences between the cohorts were that home treatment was not available to the Klaipeda patients, they received less treatment in general, had higher joint scores and more frequent bleeds. The pattern of transmission of blood-borne virus was very similar, with a high prevalence of hepatitis C antibodies. We conclude that the twinning programme between Malmo and Klaipeda has resulted in several achievements, including training of staff and a necessary inventory of the patients. This should not only form a suitable platform for the future development of haemophilia care in Lithuania, but could also serve as an example for liaisons between other haemophilia centres.}},
author = {{Berntorp, Erik and Astermark, Jan and Jurgutis, R and Lethagen, Stefan and Petersson, C}},
issn = {{1351-8216}},
keywords = {{arthropathy; factor VIII; factor IX; Haemophilia; joint score; prophylaxis}},
language = {{eng}},
number = {{2}},
pages = {{79--82}},
publisher = {{Wiley-Blackwell}},
series = {{Haemophilia}},
title = {{The Malmo-Klaipeda WFH twinning programme: a comparative description of the haemophilia cohorts}},
url = {{http://dx.doi.org/10.1046/j.1365-2516.1998.00169.x}},
doi = {{10.1046/j.1365-2516.1998.00169.x}},
volume = {{4}},
year = {{1998}},
}