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Centraliserad vård grundläggande i vårdprogram för blödarsjuka

Berntorp, Erik LU ; Lethagen, Stefan LU ; Ljung, Rolf LU ; Johnsson, H; Petrini, P; Schulman, S; Tengborn, L; Rehnby, B; Sarman, E and Asberg, B (1999) In Läkartidningen 96(15). p.1849-1852
Abstract
Haemophilia is a rare and potentially life-threatening disease. In Sweden, with a population of approximately 8.5 million, about 350 people suffer from the more severe forms of haemophilia or von Willebrand disease. Meticulous management is important if the patients are to be spared chronic disability and serious treatment complications. The disease is lifelong and affects psychosocial aspects of life among patients and their families. With the help of a grant from the Swedish Board of Halth and Welfare, a care programme has been designed to guarantee Swedish haemophiliacs comparable and optimal care. The programme has been drawn up by representatives of the three haemophilia centres in Sweden (at University Hospital, Malmo, Sahlgrenska... (More)
Haemophilia is a rare and potentially life-threatening disease. In Sweden, with a population of approximately 8.5 million, about 350 people suffer from the more severe forms of haemophilia or von Willebrand disease. Meticulous management is important if the patients are to be spared chronic disability and serious treatment complications. The disease is lifelong and affects psychosocial aspects of life among patients and their families. With the help of a grant from the Swedish Board of Halth and Welfare, a care programme has been designed to guarantee Swedish haemophiliacs comparable and optimal care. The programme has been drawn up by representatives of the three haemophilia centres in Sweden (at University Hospital, Malmo, Sahlgrenska University Hospital, Gothenburg, and Karolinska Hospital, Stockholm) in co-operation with the World Federation of National Haemophilia Organisations. To ensure optimal individual application of the programme, individualised management strategies and patient information leaflets have been prepared. (Less)
Please use this url to cite or link to this publication:
author
organization
alternative title
Centralized care is the basis of care programs for hemophilia patients
publishing date
type
Contribution to journal
publication status
published
subject
keywords
Centraliserad sjukhusvård, Regionala vårdprogram, Blödarsjuka, Hemofili B
in
Läkartidningen
volume
96
issue
15
pages
1849 - 1852
external identifiers
  • pmid:10319652
  • scopus:0033553047
ISSN
0023-7205
language
Swedish
LU publication?
yes
id
5b128b9f-b0af-4718-8bc7-276140aeb456 (old id 1115042)
alternative location
http://ltarkiv.lakartidningen.se/artNo19322
date added to LUP
2008-07-07 12:59:32
date last changed
2017-01-01 06:55:58
@article{5b128b9f-b0af-4718-8bc7-276140aeb456,
  abstract     = {Haemophilia is a rare and potentially life-threatening disease. In Sweden, with a population of approximately 8.5 million, about 350 people suffer from the more severe forms of haemophilia or von Willebrand disease. Meticulous management is important if the patients are to be spared chronic disability and serious treatment complications. The disease is lifelong and affects psychosocial aspects of life among patients and their families. With the help of a grant from the Swedish Board of Halth and Welfare, a care programme has been designed to guarantee Swedish haemophiliacs comparable and optimal care. The programme has been drawn up by representatives of the three haemophilia centres in Sweden (at University Hospital, Malmo, Sahlgrenska University Hospital, Gothenburg, and Karolinska Hospital, Stockholm) in co-operation with the World Federation of National Haemophilia Organisations. To ensure optimal individual application of the programme, individualised management strategies and patient information leaflets have been prepared.},
  author       = {Berntorp, Erik and Lethagen, Stefan and Ljung, Rolf and Johnsson, H and Petrini, P and Schulman, S and Tengborn, L and Rehnby, B and Sarman, E and Asberg, B},
  issn         = {0023-7205},
  keyword      = {Centraliserad sjukhusvård,Regionala vårdprogram,Blödarsjuka,Hemofili B},
  language     = {swe},
  number       = {15},
  pages        = {1849--1852},
  series       = {Läkartidningen},
  title        = {Centraliserad vård grundläggande i vårdprogram för blödarsjuka},
  volume       = {96},
  year         = {1999},
}