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Person-centred care in nurse-led outpatient rheumatology clinics : Conceptualization and initial development of a measurement instrument

Bala, Sidona Valentina LU ; Forslind, Kristina LU ; Fridlund, Bengt LU ; Samuelson, Karin LU ; Svensson, Björn LU and Hagell, Peter LU (2018) In Musculoskeletal Care
Abstract

Background: Person-centred care (PCC) is considered a key component of effective illness management and high-quality care. However, the PCC concept is underdeveloped in outpatient care. In rheumatology, PCC is considered an unmet need and its further development and evaluation is of high priority. The aim of the present study was to conceptualize and operationalize PCC, in order to develop an instrument for measuring patient-perceived PCC in nurse-led outpatient rheumatology clinics. Methods: A conceptual outpatient PCC framework was developed, based on the experiences of people with rheumatoid arthritis (RA), person-centredness principles and existing PCC frameworks. The resulting framework was operationalized into the PCC instrument... (More)

Background: Person-centred care (PCC) is considered a key component of effective illness management and high-quality care. However, the PCC concept is underdeveloped in outpatient care. In rheumatology, PCC is considered an unmet need and its further development and evaluation is of high priority. The aim of the present study was to conceptualize and operationalize PCC, in order to develop an instrument for measuring patient-perceived PCC in nurse-led outpatient rheumatology clinics. Methods: A conceptual outpatient PCC framework was developed, based on the experiences of people with rheumatoid arthritis (RA), person-centredness principles and existing PCC frameworks. The resulting framework was operationalized into the PCC instrument for outpatient care in rheumatology (PCCoc/rheum), which was tested for acceptability and content validity among 50 individuals with RA attending a nurse-led outpatient clinic. Results: The conceptual framework focuses on the meeting between the person with RA and the nurse, and comprises five interrelated domains: social environment, personalization, shared decision-making, empowerment and communication. Operationalization of the domains into a pool of items generated a preliminary PCCoc/rheum version, which was completed in a mean (standard deviation) of 5.3 (2.5) min. Respondents found items easy to understand (77%) and relevant (93%). The Content Validity Index of the PCCoc/rheum was 0.94 (item level range, 0.87-1.0). About 80% of respondents considered some items redundant. Based on these results, the PCCoc/rheum was revised into a 24-item questionnaire. Conclusions: A conceptual outpatient PCC framework and a 24-item questionnaire intended to measure PCC in nurse-led outpatient rheumatology clinics were developed. The extent to which the questionnaire represents a measurement instrument remains to be tested.

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author
organization
publishing date
type
Contribution to journal
publication status
epub
subject
keywords
Measurement, Nurse-led rheumatology clinics, Outpatient, Person-centred care conceptual framework
in
Musculoskeletal Care
publisher
John Wiley & Sons
external identifiers
  • scopus:85041676259
ISSN
1478-2189
DOI
10.1002/msc.1233
language
English
LU publication?
yes
id
2048477e-5e55-4c30-8732-21c2f29ba4f0
date added to LUP
2018-02-23 09:01:32
date last changed
2018-07-01 04:52:48
@article{2048477e-5e55-4c30-8732-21c2f29ba4f0,
  abstract     = {<p>Background: Person-centred care (PCC) is considered a key component of effective illness management and high-quality care. However, the PCC concept is underdeveloped in outpatient care. In rheumatology, PCC is considered an unmet need and its further development and evaluation is of high priority. The aim of the present study was to conceptualize and operationalize PCC, in order to develop an instrument for measuring patient-perceived PCC in nurse-led outpatient rheumatology clinics. Methods: A conceptual outpatient PCC framework was developed, based on the experiences of people with rheumatoid arthritis (RA), person-centredness principles and existing PCC frameworks. The resulting framework was operationalized into the PCC instrument for outpatient care in rheumatology (PCCoc/rheum), which was tested for acceptability and content validity among 50 individuals with RA attending a nurse-led outpatient clinic. Results: The conceptual framework focuses on the meeting between the person with RA and the nurse, and comprises five interrelated domains: social environment, personalization, shared decision-making, empowerment and communication. Operationalization of the domains into a pool of items generated a preliminary PCCoc/rheum version, which was completed in a mean (standard deviation) of 5.3 (2.5) min. Respondents found items easy to understand (77%) and relevant (93%). The Content Validity Index of the PCCoc/rheum was 0.94 (item level range, 0.87-1.0). About 80% of respondents considered some items redundant. Based on these results, the PCCoc/rheum was revised into a 24-item questionnaire. Conclusions: A conceptual outpatient PCC framework and a 24-item questionnaire intended to measure PCC in nurse-led outpatient rheumatology clinics were developed. The extent to which the questionnaire represents a measurement instrument remains to be tested.</p>},
  author       = {Bala, Sidona Valentina and Forslind, Kristina and Fridlund, Bengt and Samuelson, Karin and Svensson, Björn and Hagell, Peter},
  issn         = {1478-2189},
  keyword      = {Measurement,Nurse-led rheumatology clinics,Outpatient,Person-centred care conceptual framework},
  language     = {eng},
  publisher    = {John Wiley & Sons},
  series       = {Musculoskeletal Care},
  title        = {Person-centred care in nurse-led outpatient rheumatology clinics : Conceptualization and initial development of a measurement instrument},
  url          = {http://dx.doi.org/10.1002/msc.1233},
  year         = {2018},
}