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Difficult Questions and Ambivalent Answers on Genetic Testing

Wiszmeg, Andréa LU ; Lundin, Susanne LU ; Torkelson, Eva LU ; Hagen, Niclas LU and Lundberg, Cecilia LU (2012) In Culture Unbound. Journal of Current Cultural Research 4. p.463-480
Abstract
A qualitative pilot study on the attitudes of some citizens in southern Sweden toward predictive genetic testing – and a quantitative nation wide opinion poll targeting the same issues, was initiated by the Cultural Scientific Research Team of BAGADILICO. The latter is an international biomedical research environment on neurological disease at Lund University. The data of the two studies crystallized through analysis into themes around which the informants’ personal negotiations of opinions and emotions in relation to the topic centred: Concept of Risk,‘Relations and Moral Multi-layers, Worry, Agency and Autonomy, Authority, and Rationality versus Emotion. The studies indicate that even groups of people that beforehand are non-engaged in... (More)
A qualitative pilot study on the attitudes of some citizens in southern Sweden toward predictive genetic testing – and a quantitative nation wide opinion poll targeting the same issues, was initiated by the Cultural Scientific Research Team of BAGADILICO. The latter is an international biomedical research environment on neurological disease at Lund University. The data of the two studies crystallized through analysis into themes around which the informants’ personal negotiations of opinions and emotions in relation to the topic centred: Concept of Risk,‘Relations and Moral Multi-layers, Worry, Agency and Autonomy, Authority, and Rationality versus Emotion. The studies indicate that even groups of people that beforehand are non-engaged in the issue, harbour complex and ambivalent emotions and opinions toward questions like this. A certain kind of situation bound pragmatism that with difficulty could be shown by quantitative methods alone emerges. This confirms our belief that methodological consideration of combining quantitative and qualitative methods is crucial for gaining a more complex representation of attitudes, as well as for problematizing the idea of a unified public open to inquiry. (Less)
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author
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
Genetic testing, risk, public attitude, responsibility, complexity, ambivalence
in
Culture Unbound. Journal of Current Cultural Research
volume
4
pages
463 - 480
publisher
Linköping University Electronic Press
ISSN
2000-1525
DOI
10.3384/cu.2000.1525.124463
project
BAGADILICO – Excellence in Parkinson and Huntington Research
language
English
LU publication?
yes
id
7a3c131e-cd44-4c7b-a394-5c54cf3b3da7 (old id 3242776)
alternative location
http://www.cultureunbound.ep.liu.se/v4/a24/
date added to LUP
2012-12-21 14:53:05
date last changed
2016-04-16 06:14:24
@article{7a3c131e-cd44-4c7b-a394-5c54cf3b3da7,
  abstract     = {A qualitative pilot study on the attitudes of some citizens in southern Sweden toward predictive genetic testing – and a quantitative nation wide opinion poll targeting the same issues, was initiated by the Cultural Scientific Research Team of BAGADILICO. The latter is an international biomedical research environment on neurological disease at Lund University. The data of the two studies crystallized through analysis into themes around which the informants’ personal negotiations of opinions and emotions in relation to the topic centred: Concept of Risk,‘Relations and Moral Multi-layers, Worry, Agency and Autonomy, Authority, and Rationality versus Emotion. The studies indicate that even groups of people that beforehand are non-engaged in the issue, harbour complex and ambivalent emotions and opinions toward questions like this. A certain kind of situation bound pragmatism that with difficulty could be shown by quantitative methods alone emerges. This confirms our belief that methodological consideration of combining quantitative and qualitative methods is crucial for gaining a more complex representation of attitudes, as well as for problematizing the idea of a unified public open to inquiry.},
  author       = {Wiszmeg, Andréa and Lundin, Susanne and Torkelson, Eva and Hagen, Niclas and Lundberg, Cecilia},
  issn         = {2000-1525},
  keyword      = {Genetic testing,risk,public attitude,responsibility,complexity,ambivalence},
  language     = {eng},
  pages        = {463--480},
  publisher    = {Linköping University Electronic Press},
  series       = {Culture Unbound. Journal of Current Cultural Research},
  title        = {Difficult Questions and Ambivalent Answers on Genetic Testing},
  url          = {http://dx.doi.org/10.3384/cu.2000.1525.124463},
  volume       = {4},
  year         = {2012},
}