Centraliserad vård grundläggande i vårdprogram för blödarsjuka
Berntorp, Erik LU ; Lethagen, Stefan LU ; Ljung, Rolf LU
; Johnsson, H
; Petrini, P
; Schulman, S
; Tengborn, L
; Rehnby, B
; Sarman, E
and Asberg, B
(1999)
In Läkartidningen
96(15).
p.1849-1852
- Abstract
- Haemophilia is a rare and potentially life-threatening disease. In Sweden, with a population of approximately 8.5 million, about 350 people suffer from the more severe forms of haemophilia or von Willebrand disease. Meticulous management is important if the patients are to be spared chronic disability and serious treatment complications. The disease is lifelong and affects psychosocial aspects of life among patients and their families. With the help of a grant from the Swedish Board of Halth and Welfare, a care programme has been designed to guarantee Swedish haemophiliacs comparable and optimal care. The programme has been drawn up by representatives of the three haemophilia centres in Sweden (at University Hospital, Malmo, Sahlgrenska... (More)
- Haemophilia is a rare and potentially life-threatening disease. In Sweden, with a population of approximately 8.5 million, about 350 people suffer from the more severe forms of haemophilia or von Willebrand disease. Meticulous management is important if the patients are to be spared chronic disability and serious treatment complications. The disease is lifelong and affects psychosocial aspects of life among patients and their families. With the help of a grant from the Swedish Board of Halth and Welfare, a care programme has been designed to guarantee Swedish haemophiliacs comparable and optimal care. The programme has been drawn up by representatives of the three haemophilia centres in Sweden (at University Hospital, Malmo, Sahlgrenska University Hospital, Gothenburg, and Karolinska Hospital, Stockholm) in co-operation with the World Federation of National Haemophilia Organisations. To ensure optimal individual application of the programme, individualised management strategies and patient information leaflets have been prepared. (Less)
Please use this url to cite or link to this publication:
https://lup.lub.lu.se/record/1115042
- author
- Berntorp, Erik
LU
; Lethagen, Stefan
LU
; Ljung, Rolf
LU
; Johnsson, H
; Petrini, P
; Schulman, S
; Tengborn, L
; Rehnby, B
; Sarman, E
and Asberg, B
- organization
- alternative title
- Centralized care is the basis of care programs for hemophilia patients
- publishing date
- 1999
- type
- Contribution to journal
- publication status
- published
- subject
- keywords
- Centraliserad sjukhusvård, Regionala vårdprogram, Blödarsjuka, Hemofili B
- in
- Läkartidningen
- volume
- 96
- issue
- 15
- pages
- 1849 - 1852
- publisher
- Swedish Medical Association
- external identifiers
-
- pmid:10319652
- scopus:0033553047
- ISSN
- 0023-7205
- language
- Swedish
- LU publication?
- yes
- additional info
- The information about affiliations in this record was updated in December 2015. The record was previously connected to the following departments: Paediatric Hematologic Research Group (013243020), Emergency medicine/Medicine/Surgery (013240200), Clinical Coagulation Research Unit (013242510)
- id
- 5b128b9f-b0af-4718-8bc7-276140aeb456 (old id 1115042)
- alternative location
- http://ltarkiv.lakartidningen.se/artNo19322
- date added to LUP
- 2016-04-01 16:06:39
- date last changed
- 2022-01-28 17:22:43
@article{5b128b9f-b0af-4718-8bc7-276140aeb456,
abstract = {{Haemophilia is a rare and potentially life-threatening disease. In Sweden, with a population of approximately 8.5 million, about 350 people suffer from the more severe forms of haemophilia or von Willebrand disease. Meticulous management is important if the patients are to be spared chronic disability and serious treatment complications. The disease is lifelong and affects psychosocial aspects of life among patients and their families. With the help of a grant from the Swedish Board of Halth and Welfare, a care programme has been designed to guarantee Swedish haemophiliacs comparable and optimal care. The programme has been drawn up by representatives of the three haemophilia centres in Sweden (at University Hospital, Malmo, Sahlgrenska University Hospital, Gothenburg, and Karolinska Hospital, Stockholm) in co-operation with the World Federation of National Haemophilia Organisations. To ensure optimal individual application of the programme, individualised management strategies and patient information leaflets have been prepared.}},
author = {{Berntorp, Erik and Lethagen, Stefan and Ljung, Rolf and Johnsson, H and Petrini, P and Schulman, S and Tengborn, L and Rehnby, B and Sarman, E and Asberg, B}},
issn = {{0023-7205}},
keywords = {{Centraliserad sjukhusvård; Regionala vårdprogram; Blödarsjuka; Hemofili B}},
language = {{swe}},
number = {{15}},
pages = {{1849--1852}},
publisher = {{Swedish Medical Association}},
series = {{Läkartidningen}},
title = {{Centraliserad vård grundläggande i vårdprogram för blödarsjuka}},
url = {{http://ltarkiv.lakartidningen.se/artNo19322}},
volume = {{96}},
year = {{1999}},
}