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Development of a disease-specific quality of life questionnaire for children & adolescents with idiopathic thrombocytopenic purpura (ITP-QoL)

von Mackensen, S.; Nilsson, Cecilia LU ; Jankovic, M.; Mirra, N.; D'Angelo, E.; Borkhardt, A. and Ljung, Rolf LU (2006) In Pediatric Blood & Cancer 47(Suppl.5). p.688-691
Abstract
Quality of life (QoL) assessment in children with coagulation disorders is a relatively unstudied area. While hemophilia-specific questionnaires (such as Haemo-QoL) are available, no instrument for children with idiopathic thrombocytopenic purpura (ITP) has been validated yet. A disease-specific questionnaire for children with ITP was therefore developed (ITP-QoL) in three phases: (a) a preparatory phase; (b) a developmental phase; (c) a pilot testing phase. Since dimensions of Haemo-QoL were considered important for children with ITP, items were adapted, reformulated and additional dimensions were included. Two age-group versions were designed for children (aged 3-7, 8-18 years) and parents in Italian, German, and Swedish languages and... (More)
Quality of life (QoL) assessment in children with coagulation disorders is a relatively unstudied area. While hemophilia-specific questionnaires (such as Haemo-QoL) are available, no instrument for children with idiopathic thrombocytopenic purpura (ITP) has been validated yet. A disease-specific questionnaire for children with ITP was therefore developed (ITP-QoL) in three phases: (a) a preparatory phase; (b) a developmental phase; (c) a pilot testing phase. Since dimensions of Haemo-QoL were considered important for children with ITP, items were adapted, reformulated and additional dimensions were included. Two age-group versions were designed for children (aged 3-7, 8-18 years) and parents in Italian, German, and Swedish languages and were pilot tested. Pediatr Blood Cancer 2006;47:688-691. (c) 2006 Wiley-Liss, Inc. (Less)
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author
organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
children, ITP, quality of life
in
Pediatric Blood & Cancer
volume
47
issue
Suppl.5
pages
688 - 691
publisher
John Wiley and Sons Inc.
external identifiers
  • wos:000240405600015
  • scopus:33748504143
ISSN
1545-5017
DOI
10.1002/pbc.20977
language
English
LU publication?
yes
id
6ddc30cd-232d-4a9a-945d-f3106e010149 (old id 393983)
date added to LUP
2007-10-20 16:02:10
date last changed
2019-09-11 01:49:44
@article{6ddc30cd-232d-4a9a-945d-f3106e010149,
  abstract     = {Quality of life (QoL) assessment in children with coagulation disorders is a relatively unstudied area. While hemophilia-specific questionnaires (such as Haemo-QoL) are available, no instrument for children with idiopathic thrombocytopenic purpura (ITP) has been validated yet. A disease-specific questionnaire for children with ITP was therefore developed (ITP-QoL) in three phases: (a) a preparatory phase; (b) a developmental phase; (c) a pilot testing phase. Since dimensions of Haemo-QoL were considered important for children with ITP, items were adapted, reformulated and additional dimensions were included. Two age-group versions were designed for children (aged 3-7, 8-18 years) and parents in Italian, German, and Swedish languages and were pilot tested. Pediatr Blood Cancer 2006;47:688-691. (c) 2006 Wiley-Liss, Inc.},
  author       = {von Mackensen, S. and Nilsson, Cecilia and Jankovic, M. and Mirra, N. and D'Angelo, E. and Borkhardt, A. and Ljung, Rolf},
  issn         = {1545-5017},
  keyword      = {children,ITP,quality of life},
  language     = {eng},
  number       = {Suppl.5},
  pages        = {688--691},
  publisher    = {John Wiley and Sons Inc.},
  series       = {Pediatric Blood & Cancer},
  title        = {Development of a disease-specific quality of life questionnaire for children & adolescents with idiopathic thrombocytopenic purpura (ITP-QoL)},
  url          = {http://dx.doi.org/10.1002/pbc.20977},
  volume       = {47},
  year         = {2006},
}