Diet plays a central role in parental self-treatment of children with Hirschsprung’s disease : a qualitative study
Telborn, Lovisa LU ; Tofft, Louise LU
; Kristensson Hallström, Inger
LU
; Waldenvik, Frida
; Axelsson, Irene
LU
and Stenström, Pernilla
LU
(2021)
In Acta Pædiatrica
- Abstract
Aim
Hirschsprung's disease is a congenital disorder requiring surgery. Most children operated on for Hirschsprung's disease experience postoperative bowel dysmotility. Although various food is known to influence bowel motility, evidence of diet's role and dietary guidelines in treatment of bowel dysfunction in Hirschsprung's disease is lacking. The aim was to explore parental experiences of dietary effects on bowel function in children with Hirschsprung's disease.
Methods
A qualitative study including three focus groups with ten parents of children with Hirschsprung's disease at a national Hirschsprung's disease centre. Data were analysed through content analysis.
Results
Parents emphasised diet as a... (More)
Aim
Hirschsprung's disease is a congenital disorder requiring surgery. Most children operated on for Hirschsprung's disease experience postoperative bowel dysmotility. Although various food is known to influence bowel motility, evidence of diet's role and dietary guidelines in treatment of bowel dysfunction in Hirschsprung's disease is lacking. The aim was to explore parental experiences of dietary effects on bowel function in children with Hirschsprung's disease.
Methods
A qualitative study including three focus groups with ten parents of children with Hirschsprung's disease at a national Hirschsprung's disease centre. Data were analysed through content analysis.
Results
Parents emphasised diet as a strong influencer on their child's bowel function in Hirschsprung's disease. They expressed great concerns about their responsibility and strived hard to explore and adjust dietary habits to control the child's bowel function. Families’ daily and social lives were influenced by the child's diet and bowel function. The parents desired dietary support and guidelines to improve their confidence in self-treatment of Hirschsprung's disease.
Conclusion
Dietary habits play a key role in parental self-treatment of bowel function in their children with Hirschsprung's disease. Dietary guidelines for patients with Hirschsprung's disease are anticipated.
(Less)
Please use this url to cite or link to this publication:
https://lup.lub.lu.se/record/7233832a-d487-42e3-88e8-1934f51bae7d
- author
- Telborn, Lovisa
LU
; Tofft, Louise
LU
; Kristensson Hallström, Inger
LU
; Waldenvik, Frida
; Axelsson, Irene
LU
and Stenström, Pernilla
LU
- organization
- publishing date
- 2021-05-25
- type
- Contribution to journal
- publication status
- published
- subject
- keywords
- bowel habit, diet, hirschsprungs disease, interview, parental perspective
- in
- Acta Pædiatrica
- publisher
- Wiley-Blackwell
- external identifiers
-
- pmid:34032316
- scopus:85107209902
- ISSN
- 1651-2227
- DOI
- 10.1111/apa.15952
- project
- Tablets as part of e-health - a safe bridge between the hospital and the home of the newly operated child?
- eHealth as an aid for facilitating and supporting self-management in families with long-term childhood illness – development, evaluation and implementation in clinical practice
- Significance of dietary treatment and nutritional follow up in children with Hirschsprung disease
- language
- English
- LU publication?
- yes
- id
- 7233832a-d487-42e3-88e8-1934f51bae7d
- date added to LUP
- 2021-06-08 11:01:15
- date last changed
- 2023-11-08 15:21:32
@article{7233832a-d487-42e3-88e8-1934f51bae7d,
abstract = {{<br/>Aim<br/><br/>Hirschsprung's disease is a congenital disorder requiring surgery. Most children operated on for Hirschsprung's disease experience postoperative bowel dysmotility. Although various food is known to influence bowel motility, evidence of diet's role and dietary guidelines in treatment of bowel dysfunction in Hirschsprung's disease is lacking. The aim was to explore parental experiences of dietary effects on bowel function in children with Hirschsprung's disease.<br/>Methods<br/><br/>A qualitative study including three focus groups with ten parents of children with Hirschsprung's disease at a national Hirschsprung's disease centre. Data were analysed through content analysis.<br/>Results<br/><br/>Parents emphasised diet as a strong influencer on their child's bowel function in Hirschsprung's disease. They expressed great concerns about their responsibility and strived hard to explore and adjust dietary habits to control the child's bowel function. Families’ daily and social lives were influenced by the child's diet and bowel function. The parents desired dietary support and guidelines to improve their confidence in self-treatment of Hirschsprung's disease.<br/>Conclusion<br/><br/>Dietary habits play a key role in parental self-treatment of bowel function in their children with Hirschsprung's disease. Dietary guidelines for patients with Hirschsprung's disease are anticipated.<br/>}},
author = {{Telborn, Lovisa and Tofft, Louise and Kristensson Hallström, Inger and Waldenvik, Frida and Axelsson, Irene and Stenström, Pernilla}},
issn = {{1651-2227}},
keywords = {{bowel habit; diet; hirschsprungs disease; interview; parental perspective}},
language = {{eng}},
month = {{05}},
publisher = {{Wiley-Blackwell}},
series = {{Acta Pædiatrica}},
title = {{Diet plays a central role in parental self-treatment of children with Hirschsprung’s disease : a qualitative study}},
url = {{http://dx.doi.org/10.1111/apa.15952}},
doi = {{10.1111/apa.15952}},
year = {{2021}},
}