Skip to main content

Lund University Publications

LUND UNIVERSITY LIBRARIES

Immigrant Youths with Disabilities and Caregivers from the Middle-East—Challenges and Needs During Transition to Adulthood

Björquist, Elisabet ; Nordmark, Eva A-K LU ; Almasri, Nihad A. and Kristensson Hallström, Inger LU (2017) In Research in Health Science 2(4). p.363-384
Abstract
Background: Recent years of research have increased the knowledge about how to support the transition to adulthood for youths with disabilities. In today’s multi-cultural societies knowledge about transitioning immigrant youths and their caregivers is still needed.
Objective: To describe the expectations and needs of immigrant youths with disabilities residing in Sweden during their transition into adulthood as well as the expectations and needs of their caregivers, all of whom come from Arabic-speaking countries.
Method: Structured interviews based on the Rotterdam Transition Profile (RTP) questionnaire were conducted with youths 16 to 24 years of age and with caregivers based on the Family Needs Survey (FNS).
Results:... (More)
Background: Recent years of research have increased the knowledge about how to support the transition to adulthood for youths with disabilities. In today’s multi-cultural societies knowledge about transitioning immigrant youths and their caregivers is still needed.
Objective: To describe the expectations and needs of immigrant youths with disabilities residing in Sweden during their transition into adulthood as well as the expectations and needs of their caregivers, all of whom come from Arabic-speaking countries.
Method: Structured interviews based on the Rotterdam Transition Profile (RTP) questionnaire were conducted with youths 16 to 24 years of age and with caregivers based on the Family Needs Survey (FNS).
Results: Findings of interest were the youths´ dependence on parents for care demands and leisure activities, their need for information regarding future care and support and their concerns regarding future marriage. Caregivers’ felt unfamiliar with the term ‘intellectual disability’ and had a need for information about their youths’ condition and of available service for their children now and in the future.

Conclusion: To prepare immigrant youths for future support, health care and habilitation services, it is important to enhance their autonomy. Immigrant families need culturally sensitive support and information, provided by designated professionals in their language of preference during the youths’ transition to adulthood. (Less)
Please use this url to cite or link to this publication:
author
; ; and
organization
publishing date
type
Contribution to journal
publication status
published
subject
in
Research in Health Science
volume
2
issue
4
pages
363 - 384
publisher
Scholink
ISSN
2470-6205
DOI
10.22158/rhs.v2n4p363
project
Disability Research
language
English
LU publication?
yes
id
7e2a00ca-b0c7-4be9-9b35-fde59918e3f3
date added to LUP
2019-05-29 13:03:38
date last changed
2020-01-28 14:05:45
@article{7e2a00ca-b0c7-4be9-9b35-fde59918e3f3,
  abstract     = {{Background: Recent years of research have increased the knowledge about how to support the transition to adulthood for youths with disabilities. In today’s multi-cultural societies knowledge about transitioning immigrant youths and their caregivers is still needed.<br/>Objective: To describe the expectations and needs of immigrant youths with disabilities residing in Sweden during their transition into adulthood as well as the expectations and needs of their caregivers, all of whom come from Arabic-speaking countries.<br/>Method: Structured interviews based on the Rotterdam Transition Profile (RTP) questionnaire were conducted with youths 16 to 24 years of age and with caregivers based on the Family Needs Survey (FNS).<br/>Results: Findings of interest were the youths´ dependence on parents for care demands and leisure activities, their need for information regarding future care and support and their concerns regarding future marriage. Caregivers’ felt unfamiliar with the term ‘intellectual disability’ and had a need for information about their youths’ condition and of available service for their children now and in the future.<br/><br/>Conclusion: To prepare immigrant youths for future support, health care and habilitation services, it is important to enhance their autonomy. Immigrant families need culturally sensitive support and information, provided by designated professionals in their language of preference during the youths’ transition to adulthood.}},
  author       = {{Björquist, Elisabet and Nordmark, Eva A-K and Almasri, Nihad A. and Kristensson Hallström, Inger}},
  issn         = {{2470-6205}},
  language     = {{eng}},
  number       = {{4}},
  pages        = {{363--384}},
  publisher    = {{Scholink}},
  series       = {{Research in Health Science}},
  title        = {{Immigrant Youths with Disabilities and Caregivers from the Middle-East—Challenges and Needs During Transition to Adulthood}},
  url          = {{http://dx.doi.org/10.22158/rhs.v2n4p363}},
  doi          = {{10.22158/rhs.v2n4p363}},
  volume       = {{2}},
  year         = {{2017}},
}