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The first Team Haemophilia Education meeting, 2015, Amsterdam, The Netherlands

Berntorp, Erik LU ; Hart, Daniel; Mancuso, Maria Elisa; d'Oiron, Roseline; Perry, David; O'Mahony, Brian; Kaczmarek, Radoslaw; Crato, Miguel; Pasi, John and Miners, Alec, et al. (2016) In European Journal of Haematology 97. p.3-18
Abstract

Haemophilia remains a complex disorder to diagnose and manage, requiring close cooperation between multidisciplinary healthcare professionals. There are still many unmet challenges in haemophilia care. The first Team Haemophilia Education (THE) meeting, held on 7–8 May 2015 in Amsterdam, The Netherlands, aimed to promote the optimal care of haemophilia patients through education of the multidisciplinary treatment team. This was achieved by reviewing the latest developments in haemophilia management, considering how these can be implemented in the clinic to improve patient care and providing a platform for networking and debate for all haemophilia treatment team members. Haemophilia treatment centres from several countries were asked to... (More)

Haemophilia remains a complex disorder to diagnose and manage, requiring close cooperation between multidisciplinary healthcare professionals. There are still many unmet challenges in haemophilia care. The first Team Haemophilia Education (THE) meeting, held on 7–8 May 2015 in Amsterdam, The Netherlands, aimed to promote the optimal care of haemophilia patients through education of the multidisciplinary treatment team. This was achieved by reviewing the latest developments in haemophilia management, considering how these can be implemented in the clinic to improve patient care and providing a platform for networking and debate for all haemophilia treatment team members. Haemophilia treatment centres from several countries were asked to complete a premeeting online questionnaire to establish the biggest challenges that they face when managing patients. The concerns expressed were used to develop the agenda, which comprised a combination of formal presentations, case studies and informal workshops covering such topics as pharmacokinetics, laboratory assays and tailoring of treatment to individual patients. This report is a summary of the key developments in haemophilia care presented by various investigators and healthcare professionals at THE meeting 2015.

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publication status
published
subject
keywords
clotting factor concentrates, haemophilia, laboratory assays, multidisciplinary, pharmacoeconomics, pharmacokinetics
in
European Journal of Haematology
volume
97
pages
16 pages
publisher
Wiley-Blackwell
external identifiers
  • scopus:84981501593
  • wos:000378433500001
ISSN
0902-4441
DOI
10.1111/ejh.12760
language
English
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yes
id
e6d06fdc-7619-4e88-810a-4223e129a8a1
date added to LUP
2016-09-01 16:17:11
date last changed
2017-05-23 14:04:55
@article{e6d06fdc-7619-4e88-810a-4223e129a8a1,
  abstract     = {<p>Haemophilia remains a complex disorder to diagnose and manage, requiring close cooperation between multidisciplinary healthcare professionals. There are still many unmet challenges in haemophilia care. The first Team Haemophilia Education (THE) meeting, held on 7–8 May 2015 in Amsterdam, The Netherlands, aimed to promote the optimal care of haemophilia patients through education of the multidisciplinary treatment team. This was achieved by reviewing the latest developments in haemophilia management, considering how these can be implemented in the clinic to improve patient care and providing a platform for networking and debate for all haemophilia treatment team members. Haemophilia treatment centres from several countries were asked to complete a premeeting online questionnaire to establish the biggest challenges that they face when managing patients. The concerns expressed were used to develop the agenda, which comprised a combination of formal presentations, case studies and informal workshops covering such topics as pharmacokinetics, laboratory assays and tailoring of treatment to individual patients. This report is a summary of the key developments in haemophilia care presented by various investigators and healthcare professionals at THE meeting 2015.</p>},
  author       = {Berntorp, Erik and Hart, Daniel and Mancuso, Maria Elisa and d'Oiron, Roseline and Perry, David and O'Mahony, Brian and Kaczmarek, Radoslaw and Crato, Miguel and Pasi, John and Miners, Alec and Carlsson, Katarina Steen and Kitchen, Steve and Boehlen, Françoise and Giangrande, Paul and Cebura, Elizabete and Uitslager, Nanda and Osooli, Mehdi and Janeckova, Daniela and Haldon, Rosie and Rivolta, Gianna Franca},
  issn         = {0902-4441},
  keyword      = {clotting factor concentrates,haemophilia,laboratory assays,multidisciplinary,pharmacoeconomics,pharmacokinetics},
  language     = {eng},
  month        = {07},
  pages        = {3--18},
  publisher    = {Wiley-Blackwell},
  series       = {European Journal of Haematology},
  title        = {The first Team Haemophilia Education meeting, 2015, Amsterdam, The Netherlands},
  url          = {http://dx.doi.org/10.1111/ejh.12760},
  volume       = {97},
  year         = {2016},
}