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Patientens perspektiv på att leva med PAH eller CTEPH i Sverige : Enkätstudie visar på betydelsen av adekvat och upprepad information

Ivarsson, Bodil LU ; Hesselstrand, Roger LU ; Rådegran, Göran LU and Kjellström, Barbro LU (2019) In Läkartidningen 116(18). p.803-803
Abstract

For patients living with chronic conditions, the daily life will change due to symptoms, drug treatment, and psychosocial factors caused by the disease. Our studies show that Swedish patients with PAH or CTEPH are satisfied with the information they have received, but still have a wish for more. Therefore, it is important to repeat the information on a regular basis and to make sure that patients have understood and remember the messages. In order to increase the knowledge about their disease, improve compliance with treatment and quality of life, patients and next of kin should continuously be informed by the multidisciplinary team at the PAH/CTEPHspecialist care centers.

Please use this url to cite or link to this publication:
author
; ; and
organization
alternative title
Patients’ perspective of living with PAH or CTEPH in Sweden
publishing date
type
Contribution to journal
publication status
published
subject
in
Läkartidningen
volume
116
issue
18
pages
1 pages
publisher
Swedish Medical Association
external identifiers
  • scopus:85067552564
  • pmid:31192407
ISSN
0023-7205
language
Swedish
LU publication?
yes
id
d68ab082-0168-42e7-b50d-e0db9dda3d0d
alternative location
https://lakartidningen.se/klinik-och-vetenskap-1/artiklar-1/rapport/2019/04/patientens-perspektiv-pa-att-leva-med-pah-eller-cteph-i-sverige/
https://lakartidningen.se/wp-content/uploads/EditorialFiles/TF/%5bFITF%5d/FITF.pdf
date added to LUP
2019-07-08 08:59:44
date last changed
2024-03-19 17:09:57
@article{d68ab082-0168-42e7-b50d-e0db9dda3d0d,
  abstract     = {{<p>For patients living with chronic conditions, the daily life will change due to symptoms, drug treatment, and psychosocial factors caused by the disease. Our studies show that Swedish patients with PAH or CTEPH are satisfied with the information they have received, but still have a wish for more. Therefore, it is important to repeat the information on a regular basis and to make sure that patients have understood and remember the messages. In order to increase the knowledge about their disease, improve compliance with treatment and quality of life, patients and next of kin should continuously be informed by the multidisciplinary team at the PAH/CTEPHspecialist care centers.</p>}},
  author       = {{Ivarsson, Bodil and Hesselstrand, Roger and Rådegran, Göran and Kjellström, Barbro}},
  issn         = {{0023-7205}},
  language     = {{swe}},
  number       = {{18}},
  pages        = {{803--803}},
  publisher    = {{Swedish Medical Association}},
  series       = {{Läkartidningen}},
  title        = {{Patientens perspektiv på att leva med PAH eller CTEPH i Sverige : Enkätstudie visar på betydelsen av adekvat och upprepad information}},
  url          = {{https://lakartidningen.se/klinik-och-vetenskap-1/artiklar-1/rapport/2019/04/patientens-perspektiv-pa-att-leva-med-pah-eller-cteph-i-sverige/}},
  volume       = {{116}},
  year         = {{2019}},
}