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Third Åland islands conference on von Willebrand disease, 26-28 September 2012: meeting report.

Berntorp, Erik LU ; Fuchs, B; Makris, M; Montgomery, R; Flood, V; O'Donnell, J S; Federici, A B; Lillicrap, D; James, Peter LU and Budde, U, et al. (2013) In Haemophilia 19 Suppl 3. p.1-18
Abstract
The first meeting of international specialists in the field of von Willebrand disease (VWD) was held in the Åland islands in 1998 where Erik von Willebrand had first observed a bleeding disorder in some members of a family from Föglö and a summary of the meeting was published in 1999. The second meeting was held in 2010 and a report of the meeting was published in 2012. Topics covered included progress in understanding of VWD over the last 50 years; multimers; classification of VWD; pharmacokinetics and laboratory assays; genetics; treating the paediatric patient; prophylaxis; geriatrics; gene therapy and treatment guidelines. This third meeting held over 3 days covered the structure and function of von Willebrand factor (VWF); type 1 VWD,... (More)
The first meeting of international specialists in the field of von Willebrand disease (VWD) was held in the Åland islands in 1998 where Erik von Willebrand had first observed a bleeding disorder in some members of a family from Föglö and a summary of the meeting was published in 1999. The second meeting was held in 2010 and a report of the meeting was published in 2012. Topics covered included progress in understanding of VWD over the last 50 years; multimers; classification of VWD; pharmacokinetics and laboratory assays; genetics; treating the paediatric patient; prophylaxis; geriatrics; gene therapy and treatment guidelines. This third meeting held over 3 days covered the structure and function of von Willebrand factor (VWF); type 1 VWD, the most common form of the disease; a lifespan of pharmacokinetics in VWD; detecting inhibitors in VWD patients; and special challenges in understanding and treating the female VWD patient. (Less)
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Contribution to journal
publication status
published
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Haemophilia
volume
19 Suppl 3
pages
1 - 18
publisher
Federation of European Neuroscience Societies and Blackwell Publishing Ltd
external identifiers
  • wos:000314829400001
  • pmid:23383607
  • scopus:84873425397
ISSN
1351-8216
DOI
10.1111/hae.12078
language
English
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yes
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1515535b-94bd-4986-9b38-79f04fcf2543 (old id 3559950)
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http://www.ncbi.nlm.nih.gov/pubmed/23383607?dopt=Abstract
date added to LUP
2013-03-04 09:57:51
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2019-02-20 08:41:54
@article{1515535b-94bd-4986-9b38-79f04fcf2543,
  abstract     = {The first meeting of international specialists in the field of von Willebrand disease (VWD) was held in the Åland islands in 1998 where Erik von Willebrand had first observed a bleeding disorder in some members of a family from Föglö and a summary of the meeting was published in 1999. The second meeting was held in 2010 and a report of the meeting was published in 2012. Topics covered included progress in understanding of VWD over the last 50 years; multimers; classification of VWD; pharmacokinetics and laboratory assays; genetics; treating the paediatric patient; prophylaxis; geriatrics; gene therapy and treatment guidelines. This third meeting held over 3 days covered the structure and function of von Willebrand factor (VWF); type 1 VWD, the most common form of the disease; a lifespan of pharmacokinetics in VWD; detecting inhibitors in VWD patients; and special challenges in understanding and treating the female VWD patient.},
  author       = {Berntorp, Erik and Fuchs, B and Makris, M and Montgomery, R and Flood, V and O'Donnell, J S and Federici, A B and Lillicrap, D and James, Peter and Budde, U and Morfini, M and Petrini, Alexander and Austin, S and Kannicht, C and Jiménez-Yuste, V and Lee, C},
  issn         = {1351-8216},
  language     = {eng},
  pages        = {1--18},
  publisher    = {Federation of European Neuroscience Societies and Blackwell Publishing Ltd},
  series       = {Haemophilia},
  title        = {Third Åland islands conference on von Willebrand disease, 26-28 September 2012: meeting report.},
  url          = {http://dx.doi.org/10.1111/hae.12078},
  volume       = {19 Suppl 3},
  year         = {2013},
}