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Third Åland islands conference on von Willebrand disease, 26-28 September 2012: meeting report.

Berntorp, Erik LU ; Fuchs, B ; Makris, M ; Montgomery, R ; Flood, V ; O'Donnell, J S ; Federici, A B ; Lillicrap, D ; James, Peter LU orcid and Budde, U , et al. (2013) In Haemophilia 19 Suppl 3. p.1-18
Abstract
The first meeting of international specialists in the field of von Willebrand disease (VWD) was held in the Åland islands in 1998 where Erik von Willebrand had first observed a bleeding disorder in some members of a family from Föglö and a summary of the meeting was published in 1999. The second meeting was held in 2010 and a report of the meeting was published in 2012. Topics covered included progress in understanding of VWD over the last 50 years; multimers; classification of VWD; pharmacokinetics and laboratory assays; genetics; treating the paediatric patient; prophylaxis; geriatrics; gene therapy and treatment guidelines. This third meeting held over 3 days covered the structure and function of von Willebrand factor (VWF); type 1 VWD,... (More)
The first meeting of international specialists in the field of von Willebrand disease (VWD) was held in the Åland islands in 1998 where Erik von Willebrand had first observed a bleeding disorder in some members of a family from Föglö and a summary of the meeting was published in 1999. The second meeting was held in 2010 and a report of the meeting was published in 2012. Topics covered included progress in understanding of VWD over the last 50 years; multimers; classification of VWD; pharmacokinetics and laboratory assays; genetics; treating the paediatric patient; prophylaxis; geriatrics; gene therapy and treatment guidelines. This third meeting held over 3 days covered the structure and function of von Willebrand factor (VWF); type 1 VWD, the most common form of the disease; a lifespan of pharmacokinetics in VWD; detecting inhibitors in VWD patients; and special challenges in understanding and treating the female VWD patient. (Less)
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organization
publishing date
type
Contribution to journal
publication status
published
subject
in
Haemophilia
volume
19 Suppl 3
pages
1 - 18
publisher
Wiley-Blackwell
external identifiers
  • wos:000314829400001
  • pmid:23383607
  • scopus:84873425397
  • pmid:23383607
ISSN
1351-8216
DOI
10.1111/hae.12078
language
English
LU publication?
yes
additional info
The information about affiliations in this record was updated in December 2015. The record was previously connected to the following departments: Clinical Coagulation Research Unit (013242510), Division of Physiotherapy (Closed 2012) (013042000), Department of Immunotechnology (011029300)
id
1515535b-94bd-4986-9b38-79f04fcf2543 (old id 3559950)
alternative location
http://www.ncbi.nlm.nih.gov/pubmed/23383607?dopt=Abstract
date added to LUP
2016-04-04 08:32:58
date last changed
2023-09-05 15:34:03
@article{1515535b-94bd-4986-9b38-79f04fcf2543,
  abstract     = {{The first meeting of international specialists in the field of von Willebrand disease (VWD) was held in the Åland islands in 1998 where Erik von Willebrand had first observed a bleeding disorder in some members of a family from Föglö and a summary of the meeting was published in 1999. The second meeting was held in 2010 and a report of the meeting was published in 2012. Topics covered included progress in understanding of VWD over the last 50 years; multimers; classification of VWD; pharmacokinetics and laboratory assays; genetics; treating the paediatric patient; prophylaxis; geriatrics; gene therapy and treatment guidelines. This third meeting held over 3 days covered the structure and function of von Willebrand factor (VWF); type 1 VWD, the most common form of the disease; a lifespan of pharmacokinetics in VWD; detecting inhibitors in VWD patients; and special challenges in understanding and treating the female VWD patient.}},
  author       = {{Berntorp, Erik and Fuchs, B and Makris, M and Montgomery, R and Flood, V and O'Donnell, J S and Federici, A B and Lillicrap, D and James, Peter and Budde, U and Morfini, M and Petrini, Alexander and Austin, S and Kannicht, C and Jiménez-Yuste, V and Lee, C}},
  issn         = {{1351-8216}},
  language     = {{eng}},
  pages        = {{1--18}},
  publisher    = {{Wiley-Blackwell}},
  series       = {{Haemophilia}},
  title        = {{Third Åland islands conference on von Willebrand disease, 26-28 September 2012: meeting report.}},
  url          = {{http://dx.doi.org/10.1111/hae.12078}},
  doi          = {{10.1111/hae.12078}},
  volume       = {{19 Suppl 3}},
  year         = {{2013}},
}