Increased burden on caregivers of having a child with haemophilia complicated by inhibitors.
(2013) In Pediatric Blood & Cancer- Abstract
- Having a child with a chronic disease often increases the burden in the family with more hospital visits, treatment administration, and increased worries for the ill child. A cross-sectional, international, multi-centre study in caregivers of children <18 years with haemophilia and inhibitor was performed at Haemophilia Treatment Centres in Sweden, UK, and Canada to evaluate caregivers' burden and their health-related quality of life (HRQoL) compared to that of caregivers of children on prophylaxis without inhibitors and caregivers of healthy children.
Please use this url to cite or link to this publication:
https://lup.lub.lu.se/record/4178908
- author
- Lindvall, Karin LU ; von Mackensen, Sylvia ; Elmståhl, Sölve LU ; Khair, Kate ; Stain, Ann Marie ; Ljung, Rolf LU and Berntorp, Erik LU
- organization
- publishing date
- 2013-11-26
- type
- Contribution to journal
- publication status
- published
- subject
- in
- Pediatric Blood & Cancer
- publisher
- John Wiley & Sons Inc.
- external identifiers
-
- pmid:24277475
- wos:000330683700022
- scopus:84893479580
- pmid:24277475
- ISSN
- 1545-5017
- DOI
- 10.1002/pbc.24856
- language
- English
- LU publication?
- yes
- id
- 2379d169-ff49-4df7-bfa1-d0ff396e75a5 (old id 4178908)
- alternative location
- http://www.ncbi.nlm.nih.gov/pubmed/24277475?dopt=Abstract
- date added to LUP
- 2016-04-01 11:16:55
- date last changed
- 2022-05-14 00:27:12
@article{2379d169-ff49-4df7-bfa1-d0ff396e75a5, abstract = {{Having a child with a chronic disease often increases the burden in the family with more hospital visits, treatment administration, and increased worries for the ill child. A cross-sectional, international, multi-centre study in caregivers of children <18 years with haemophilia and inhibitor was performed at Haemophilia Treatment Centres in Sweden, UK, and Canada to evaluate caregivers' burden and their health-related quality of life (HRQoL) compared to that of caregivers of children on prophylaxis without inhibitors and caregivers of healthy children.}}, author = {{Lindvall, Karin and von Mackensen, Sylvia and Elmståhl, Sölve and Khair, Kate and Stain, Ann Marie and Ljung, Rolf and Berntorp, Erik}}, issn = {{1545-5017}}, language = {{eng}}, month = {{11}}, publisher = {{John Wiley & Sons Inc.}}, series = {{Pediatric Blood & Cancer}}, title = {{Increased burden on caregivers of having a child with haemophilia complicated by inhibitors.}}, url = {{http://dx.doi.org/10.1002/pbc.24856}}, doi = {{10.1002/pbc.24856}}, year = {{2013}}, }