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Increased burden on caregivers of having a child with haemophilia complicated by inhibitors.

Lindvall, Karin LU ; von Mackensen, Sylvia; Elmståhl, Sölve LU ; Khair, Kate; Stain, Ann Marie; Ljung, Rolf LU and Berntorp, Erik LU (2013) In Pediatric Blood & Cancer2004-01-01+01:00
Abstract
Having a child with a chronic disease often increases the burden in the family with more hospital visits, treatment administration, and increased worries for the ill child. A cross-sectional, international, multi-centre study in caregivers of children <18 years with haemophilia and inhibitor was performed at Haemophilia Treatment Centres in Sweden, UK, and Canada to evaluate caregivers' burden and their health-related quality of life (HRQoL) compared to that of caregivers of children on prophylaxis without inhibitors and caregivers of healthy children.
Please use this url to cite or link to this publication:
author
organization
publishing date
type
Contribution to journal
publication status
published
subject
in
Pediatric Blood & Cancer2004-01-01+01:00
publisher
John Wiley and Sons Inc.
external identifiers
  • pmid:24277475
  • wos:000330683700022
  • scopus:84893479580
ISSN
1545-5017
DOI
10.1002/pbc.24856
language
English
LU publication?
yes
id
2379d169-ff49-4df7-bfa1-d0ff396e75a5 (old id 4178908)
alternative location
http://www.ncbi.nlm.nih.gov/pubmed/24277475?dopt=Abstract
date added to LUP
2013-12-02 19:14:33
date last changed
2019-02-10 03:28:51
@article{2379d169-ff49-4df7-bfa1-d0ff396e75a5,
  abstract     = {Having a child with a chronic disease often increases the burden in the family with more hospital visits, treatment administration, and increased worries for the ill child. A cross-sectional, international, multi-centre study in caregivers of children &lt;18 years with haemophilia and inhibitor was performed at Haemophilia Treatment Centres in Sweden, UK, and Canada to evaluate caregivers' burden and their health-related quality of life (HRQoL) compared to that of caregivers of children on prophylaxis without inhibitors and caregivers of healthy children.},
  author       = {Lindvall, Karin and von Mackensen, Sylvia and Elmståhl, Sölve and Khair, Kate and Stain, Ann Marie and Ljung, Rolf and Berntorp, Erik},
  issn         = {1545-5017},
  language     = {eng},
  month        = {11},
  publisher    = {John Wiley and Sons Inc.},
  series       = {Pediatric Blood & Cancer2004-01-01+01:00},
  title        = {Increased burden on caregivers of having a child with haemophilia complicated by inhibitors.},
  url          = {http://dx.doi.org/10.1002/pbc.24856},
  year         = {2013},
}