eHealth as an Aid for Facilitating and Supporting Self-Management in Families with Long-Term Childhood Illness; Development, Evaluation, and Implementation in Clinical Practice
(2023) In Clinical Health Promotion - Research and Best Practice for patients, staff and community 13(1).- Abstract
- Introduction eHealth, defined by WHO as: “the transfer of health resources and healthcare by electronic means” are expected to increase communication between healthcare providers and patients and increase accessibility and patient participation in healthcare. The aim of this research programme is to: 1) develop a sustainable multidisciplinary environment for advancing, evaluating, and implementing models of eHealth to promote self-management for children and their families, and 2) increase the present knowledge of clinical and economic cost-effectiveness of eHealth as an aid for supporting self-management in families with long-term childhood illness.
Method The research is performed in Sweden, Denmark, and Ethiopia and... (More) - Introduction eHealth, defined by WHO as: “the transfer of health resources and healthcare by electronic means” are expected to increase communication between healthcare providers and patients and increase accessibility and patient participation in healthcare. The aim of this research programme is to: 1) develop a sustainable multidisciplinary environment for advancing, evaluating, and implementing models of eHealth to promote self-management for children and their families, and 2) increase the present knowledge of clinical and economic cost-effectiveness of eHealth as an aid for supporting self-management in families with long-term childhood illness.
Method The research is performed in Sweden, Denmark, and Ethiopia and organized in three research domains: eHealth to enable and promote self-management in advanced paediatric care, eHealth for early diagnosis and treatment in paediatric care, and Co-Creation of multidisciplinary knowledge for the translation of eHealth in practice. The research follows a framework for developing and evaluating complex interventions in healthcare. Through participatory design family members and care providers participate throughout the research process. Quantitative and qualitative data as well as health economics are collected in six clinical areas. Five general areas are run transversal.
Results and conclusion Evidence-based best practices in developing and evaluating eHealth in paediatric healthcare will be suggested. As implementation is part of the programme, cost-effective eHealth directly benefiting families and healthcare services will be guaranteed. (Less)
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https://lup.lub.lu.se/record/1d04a432-0453-40e4-9bcf-e6da325d4543
- author
- organization
-
- Clinical Health Promotion Centre (research group)
- EpiHealth: Epidemiology for Health
- LUCC: Lund University Cancer Centre
- Child and Family Health (research group)
- Metalund
- Department of Psychology
- Department of Computer Science
- LTH Profile Area: Engineering Health
- Software Development and Environments
- ELLIIT: the Linköping-Lund initiative on IT and mobile communication
- Economic demography
- LU Profile Area: Light and Materials
- Pediatric surgery (research group)
- Paediatrics (Lund)
- Department of Health Sciences
- publishing date
- 2023-10-13
- type
- Contribution to journal
- publication status
- published
- subject
- keywords
- E-health, Children, Parents, Youth, Hiv, Cerebral Palsy, Hospital at home, Postoperative Care, Cancer, Heart transplatation, Pediatric care, neonatology
- in
- Clinical Health Promotion - Research and Best Practice for patients, staff and community
- volume
- 13
- issue
- 1
- article number
- e23002
- DOI
- 10.29102/clinhp.23002
- project
- eHealth as an aid for facilitating and supporting self-management in families with long-term childhood illness – development, evaluation and implementation in clinical practice
- language
- English
- LU publication?
- yes
- id
- 1d04a432-0453-40e4-9bcf-e6da325d4543
- date added to LUP
- 2023-10-23 10:27:33
- date last changed
- 2023-10-24 14:41:05
@article{1d04a432-0453-40e4-9bcf-e6da325d4543, abstract = {{Introduction eHealth, defined by WHO as: “the transfer of health resources and healthcare by electronic means” are expected to increase communication between healthcare providers and patients and increase accessibility and patient participation in healthcare. The aim of this research programme is to: 1) develop a sustainable multidisciplinary environment for advancing, evaluating, and implementing models of eHealth to promote self-management for children and their families, and 2) increase the present knowledge of clinical and economic cost-effectiveness of eHealth as an aid for supporting self-management in families with long-term childhood illness. <br/><br/>Method The research is performed in Sweden, Denmark, and Ethiopia and organized in three research domains: eHealth to enable and promote self-management in advanced paediatric care, eHealth for early diagnosis and treatment in paediatric care, and Co-Creation of multidisciplinary knowledge for the translation of eHealth in practice. The research follows a framework for developing and evaluating complex interventions in healthcare. Through participatory design family members and care providers participate throughout the research process. Quantitative and qualitative data as well as health economics are collected in six clinical areas. Five general areas are run transversal. <br/><br/>Results and conclusion Evidence-based best practices in developing and evaluating eHealth in paediatric healthcare will be suggested. As implementation is part of the programme, cost-effective eHealth directly benefiting families and healthcare services will be guaranteed.}}, author = {{Kristensson Hallström, Inger and Castor, Charlotte and Hansson, Helena and Holmberg, Robert and Jerene, Degu and Johnsson, Björn A and Kristjánsdóttir, Gudrún and Kristjánsdóttir, Ólöf and Magnusson, Boris and Persson, Magnus C and Sjöström-Strand, Annica and Welander Tärneberg, Anna and Stenström, Pernilla and Tornberg, Åsa}}, keywords = {{E-health; Children; Parents; Youth; Hiv; Cerebral Palsy; Hospital at home; Postoperative Care; Cancer; Heart transplatation; Pediatric care; neonatology}}, language = {{eng}}, month = {{10}}, number = {{1}}, series = {{Clinical Health Promotion - Research and Best Practice for patients, staff and community}}, title = {{eHealth as an Aid for Facilitating and Supporting Self-Management in Families with Long-Term Childhood Illness; Development, Evaluation, and Implementation in Clinical Practice}}, url = {{http://dx.doi.org/10.29102/clinhp.23002}}, doi = {{10.29102/clinhp.23002}}, volume = {{13}}, year = {{2023}}, }