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eHealth as an Aid for Facilitating and Supporting Self-Management in Families with Long-Term Childhood Illness; Development, Evaluation, and Implementation in Clinical Practice

Kristensson Hallström, Inger LU ; Castor, Charlotte LU ; Hansson, Helena LU ; Holmberg, Robert LU ; Jerene, Degu LU ; Johnsson, Björn A LU orcid ; Kristjánsdóttir, Gudrún LU orcid ; Kristjánsdóttir, Ólöf LU ; Magnusson, Boris LU and Persson, Magnus C LU orcid , et al. (2023) In Clinical Health Promotion - Research and Best Practice for patients, staff and community 13(1).
Abstract
Introduction eHealth, defined by WHO as: “the transfer of health resources and healthcare by electronic means” are expected to increase communication between healthcare providers and patients and increase accessibility and patient participation in healthcare. The aim of this research programme is to: 1) develop a sustainable multidisciplinary environment for advancing, evaluating, and implementing models of eHealth to promote self-management for children and their families, and 2) increase the present knowledge of clinical and economic cost-effectiveness of eHealth as an aid for supporting self-management in families with long-term childhood illness.

Method The research is performed in Sweden, Denmark, and Ethiopia and... (More)
Introduction eHealth, defined by WHO as: “the transfer of health resources and healthcare by electronic means” are expected to increase communication between healthcare providers and patients and increase accessibility and patient participation in healthcare. The aim of this research programme is to: 1) develop a sustainable multidisciplinary environment for advancing, evaluating, and implementing models of eHealth to promote self-management for children and their families, and 2) increase the present knowledge of clinical and economic cost-effectiveness of eHealth as an aid for supporting self-management in families with long-term childhood illness.

Method The research is performed in Sweden, Denmark, and Ethiopia and organized in three research domains: eHealth to enable and promote self-management in advanced paediatric care, eHealth for early diagnosis and treatment in paediatric care, and Co-Creation of multidisciplinary knowledge for the translation of eHealth in practice. The research follows a framework for developing and evaluating complex interventions in healthcare. Through participatory design family members and care providers participate throughout the research process. Quantitative and qualitative data as well as health economics are collected in six clinical areas. Five general areas are run transversal.

Results and conclusion Evidence-based best practices in developing and evaluating eHealth in paediatric healthcare will be suggested. As implementation is part of the programme, cost-effective eHealth directly benefiting families and healthcare services will be guaranteed. (Less)
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organization
publishing date
type
Contribution to journal
publication status
published
subject
keywords
E-health, Children, Parents, Youth, Hiv, Cerebral Palsy, Hospital at home, Postoperative Care, Cancer, Heart transplatation, Pediatric care, neonatology
in
Clinical Health Promotion - Research and Best Practice for patients, staff and community
volume
13
issue
1
article number
e23002
DOI
10.29102/clinhp.23002
project
eHealth as an aid for facilitating and supporting self-management in families with long-term childhood illness – development, evaluation and implementation in clinical practice
language
English
LU publication?
yes
id
1d04a432-0453-40e4-9bcf-e6da325d4543
date added to LUP
2023-10-23 10:27:33
date last changed
2023-10-24 14:41:05
@article{1d04a432-0453-40e4-9bcf-e6da325d4543,
  abstract     = {{Introduction  eHealth, defined by WHO as: “the transfer of health resources and healthcare by electronic means” are expected to increase communication between healthcare providers and patients and increase accessibility and patient participation in healthcare. The aim of this research programme is to: 1) develop a sustainable multidisciplinary environment for advancing, evaluating, and implementing models of eHealth to promote self-management for children and their families, and 2) increase the present knowledge of clinical and economic cost-effectiveness of eHealth as an aid for supporting self-management in families with long-term childhood illness. <br/><br/>Method  The research is performed in Sweden, Denmark, and Ethiopia and organized in three research domains: eHealth to enable and promote self-management in advanced paediatric care, eHealth for early diagnosis and treatment in paediatric care, and Co-Creation of multidisciplinary knowledge for the translation of eHealth in practice. The research follows a framework for developing and evaluating complex interventions in healthcare. Through participatory design family members and care providers participate throughout the research process. Quantitative and qualitative data as well as health economics are collected in six clinical areas. Five general areas are run transversal. <br/><br/>Results and conclusion  Evidence-based best practices in developing and evaluating eHealth in paediatric healthcare will be suggested. As implementation is part of the programme, cost-effective eHealth directly benefiting families and healthcare services will be guaranteed.}},
  author       = {{Kristensson Hallström, Inger and Castor, Charlotte and Hansson, Helena and Holmberg, Robert and Jerene, Degu and Johnsson, Björn A and Kristjánsdóttir, Gudrún and Kristjánsdóttir, Ólöf and Magnusson, Boris and Persson, Magnus C and Sjöström-Strand, Annica and Welander Tärneberg, Anna and Stenström, Pernilla and Tornberg, Åsa}},
  keywords     = {{E-health; Children; Parents; Youth; Hiv; Cerebral Palsy; Hospital at home; Postoperative Care; Cancer; Heart transplatation; Pediatric care; neonatology}},
  language     = {{eng}},
  month        = {{10}},
  number       = {{1}},
  series       = {{Clinical Health Promotion - Research and Best Practice for patients, staff and community}},
  title        = {{eHealth as an Aid for Facilitating and Supporting Self-Management in Families with Long-Term Childhood Illness; Development, Evaluation, and Implementation in Clinical Practice}},
  url          = {{http://dx.doi.org/10.29102/clinhp.23002}},
  doi          = {{10.29102/clinhp.23002}},
  volume       = {{13}},
  year         = {{2023}},
}